CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3051-C59402	C59402	Surgery procedure first metatarsal osteotomy arthrodesis ankle laterality type	Laterality type relative to the ankle surgical first metatarsal osteotomy/arthrodesis procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2200-C22619	C22619	Therapy bill unit service value	The total units of service billed for the patient or client's therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22867	C22867	Imaging pulse sequence cerebral palsy type	Type of imaging pulse sequence used in cerebral palsy specific case report form (this is using a different permissible value list that overlaps and combines terms within the Imaging pulse sequency type CDE)	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2016-C56296	C56296	NIH Toolbox Cognitive Cognition total composition computed score	The total composite computed score for the Cognition field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C17463	C17463	Cardiovascular history abnormal echocardiogram indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C22586	C22586	Maternal birth date	Date (and time, if applicable and known) the mother of the participant/subject was born	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F1305-C14702	C14702	Berg Balance Scale (BBS) - turn head scale	The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2015-C53699	C53699	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk B score	Score of the Walk, Don't Walk B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12791	C12791	Gene exon last deleted duplicated name	Name of the exon last deleted or duplicated	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59293	C59293	Surgery procedure pelvic osteotomy right hip perform type other text	The free-text field related to "Surgery procedure pelvic osteotomy right hip perform type" specifying other text.	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59437	C59437	Passive range motion knee joint right side extension measurement value	Value of the right side knee joint extension passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C22656	C22656	Medical history bronchopulmonary dysplasia indicator	Indicator of whether the participant/subject has been diagnosed with bronchopulmonary dysplasia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3052-C59253	C59253	Surgery procedure adductor lengthen percutaneous right hip anatomic site	Anatomic site of the percutaneous surgical adductor lengthening procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2200-C22627	C22627	Face Legs Activity Cry Consolability (FLACC) - Cry score	The score of the cry portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22876	C22876	Imaging brain edema diagnosis indicator	The indicator related to brain edema being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58655	C58655	Cerebral palsy distribution type	Type of condition distribution (spasticity subtype) experienced by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2016-C56304	C56304	NIH Toolbox Cognitive Picture vocabulary age 3 up age adjusted scale score	The age adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C17471	C17471	Cardiovascular history arrhythmia supraventricular tachycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of supraventricular tachycardia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17496	C17496	Delay social function indicator	Indicator as to whether the participant/subject has or had delayed social function	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2208-C22792	C22792	Vaccines received indicator	Indicates whether participant/subject received the vaccine	Supplemental	Vaccination History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53707	C53707	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total deviation excess five percent cutoff value	Value of the Opposite Worlds Same World total time difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12800	C12800	Gene missense nonsense variant point mutation insertion deletion type	Type of the insertion deletion of the missense/nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59301	C59301	Surgery procedure proximal femoral resection hip laterality type	Laterality type relative to the hip surgical proximal femoral resection procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59448	C59448	Passive range motion knee joint right side transmalleolar angle measurement value	Value of the right side knee joint transmalleolar angle passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.