CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 551 - 575 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59360 Surgery procedure hindfoot arthrodesis ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle hindfoot arthrodesis surgical procedure

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle False Cerebral Palsy Cerebral Palsy
C22845 Modified Ashworth Scale - Limb tone testing right toes scale

The scale of limb tone testing for the right toes, as part of the Modified Ashworth Scale

 Supplemental Modified Ashworth Scale - Limb Tone Testing False Cerebral Palsy Cerebral Palsy
C09587 Brief Pain Inventory (BPI) - pain relations interference scale

Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
C59320 Surgery procedure anterior tibialis tendon transfer ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle anterior tibialis tendon transfer surgical procedure

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle False Cerebral Palsy Cerebral Palsy
C58566 Orthosis type other text

Text describing the presence of any other orthotic device used

 Supplemental External Devices - CP False Cerebral Palsy Cerebral Palsy
C22619 Therapy bill unit service value

The total units of service billed for the patient or client's therapy treatment session

 Supplemental Physical Therapy Individual Session False Cerebral Palsy Cerebral Palsy
C22646 Medical history retinopathy of prematurity indicator

Indicator of whether the participant/subject has been affected by Retinopathy of prematurity

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C14706 Berg Balance Scale (BBS) - scale total score

The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Cerebral Palsy Cerebral Palsy
C53622 Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score B score

Score of the Sky Search attention score B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C22618 Therapy session minute duration

The duration of the patient or client's treatment session in minutes

 Supplemental Speech and Language Therapy Treatment Session False Cerebral Palsy Cerebral Palsy
C22866 Imaging magnetic resonance imaging date and time

The date and time related to the magnetic resonance imaging

 Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging False Cerebral Palsy Cerebral Palsy
C17462 Cardiovascular history abnormal echocardiogram decreased left ventricular function indicator

Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting decreased left ventricular (LV) function

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C12795 Gene coding region sequenced indicator

Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons

 Supplemental Mutation Analysis False Cerebral Palsy Cerebral Palsy
C56423 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other used indicator

The indicator relating to whether the examinee used his/her other visual or hearing aid during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Cerebral Palsy Cerebral Palsy
C21121 Subject zip postal code number

The number of the subject/participant's zip/postal code

 Supplemental Demographics False Cerebral Palsy Cerebral Palsy
C59392 Surgery procedure calcaneal osteotomy right ankle type

Type of calcaneal osteotomy surgical procedure performed on the right ankle

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle False Cerebral Palsy Cerebral Palsy
C22853 Modified Ashworth Scale - Limb tone testing right fingers muscle movement type

The type of the muscle movement of limb tone testing for the right fingers, as part of the Modified Ashworth Scale

 Supplemental Modified Ashworth Scale - Limb Tone Testing False Cerebral Palsy Cerebral Palsy
C59328 Surgery procedure posterior tibialis tendon transfer ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle posterior tibialis tendon transfer surgical procedure

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle False Cerebral Palsy Cerebral Palsy
C58574 Static lower extremity stretch orthosis splint use anatomic site laterality type

Side of the body of the anatomic site of the static lower extremity stretching orthosis/splints use

 Supplemental External Devices - CP False Cerebral Palsy Cerebral Palsy
C22904 Physical therapy focus area type

The type related to physical therapy focus area

 Supplemental Physical Therapy Individual Session False Cerebral Palsy Cerebral Palsy
C22655 Medical history respiratory distress syndrome indicator

Indicator of whether the participant/subject has been diagnosed with respiratory distress syndrome

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C53630 Test of Everyday Attention for Children (TEA-Ch) - Score deviation excess five percent cutoff count

Count of the Score! difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C22626 Face Legs Activity Cry Consolability (FLACC) - Activity score

The score of the activity portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)

 Supplemental Speech and Language Therapy Treatment Session False Cerebral Palsy Cerebral Palsy
C22875 Imaging brain hemorrhage diagnosis indicator

The indicator related to brain hemorrhage being diagnosed from imaging

 Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging False Cerebral Palsy Cerebral Palsy
C17470 Cardiovascular history arrhythmia other text

Text description of any cardiac arrhythmia the participant/subject has or had in a form other than atrial fibrillation, atrial flutter, supraventricular tachycardia, ventricular tachycardia, or bradycardia

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
Displaying 551 - 575 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.