CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2201-C19157	C19157	Primary care physician follow-up care indicator	Indicator for follow-up care from a primary care physician	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2016-C56352	C56352	NIH Toolbox Cognitive Oral reading recognition english age 7 up fully adjusted scale score	The fully adjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3051-C59344	C59344	Surgery procedure toe flexor lengthen right ankle anatomic site	Anatomic site of the surgical toe flexor lengthening procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2691-C58632	C58632	Access communication device type another body part specify text	Text describing the presence of another body part for type of access communication device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2015-C53627	C53627	Test of Everyday Attention for Children (TEA-Ch) - Score percentage value	Value of the Score! Percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C00328	C00328	Prior traumatic injury type	General location of traumatic injury, if evidence of prior traumatic injury	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2291-C18937	C18937	Muscle strength abnormality assessment other text	The free-text field related to 'Muscle strength abnormality assessment type' specifying other text. The muscle strength abnormality type	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59237	C59237	Surgery procedure patellar tendon shorten advance right knee type	Type of the surgical patellar tendon shortening/advancement procedure performed on the right knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2205-C22788	C22788	Risk Factor Questionnaire (RFQ) - age 12-17 moderate physical activity indicator	Hours spent doing moderate physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2691-C58498	C58498	Transfer transportation device type other text	Text describing the presence of any other transfer/transportation device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F1968-C56428	C56428	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension confidence interval upper bound value	The upper bound of the subject's Verbal Comprehension confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2201-C22612	C22612	Home modification provide indicator	Indicates if the participant/subject was provided with any home modifications	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2290-C22911	C22911	Physical therapy orthoses type	The type of orthoses as related to the physical therapy	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2060-C20812	C20812	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep refresh assessment past week scale	The scale which represents how often the participant's sleep was refreshing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22662	C22662	Medical history recurrent lower respiratory tract infection indicator	Indicator of whether the participant/subject has been diagnosed with recurrent lower respiratory tract infections	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22633	C22633	Speech language pathology focus area language expressive produce intervention type	The type of intervention used for expressive language and producing as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3051-C59352	C59352	Surgery procedure tibial derotational osteotomy ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle tibial derotational osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22102	C22102	Modified Ashworth Scale - Limb tone testing right wrist scale	The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09579	C09579	Brief Pain Inventory (BPI) - average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2015-C53635	C53635	Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct deviation from first count	Count of the Creature Counting total correct difference from First (Version A) Creature Counting total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2291-C21106	C21106	Gait assessment result other text	The free-text field to specify the other result of the gait assessment	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59312	C59312	Surgery procedure gastrocnemius resection ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle gastrocnemius resection surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2206-C08668	C08668	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence near farm fields indicator	Indicator as to whether the participant's/subject's first residence was located near farm fields (within 1/4mile)	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58506	C58506	IPAD application text	Text describing the type of iPad application used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F1968-C56437	C56437	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 confidence interval upper bound value	The upper bound of the subject's Full Scale IQ-4 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.