CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C17479	C17479	Cardiovascular history ischemia heart disease indicator	Indicator as to whether the participant/subject has or had ischemia heart disease	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2198-C12609	C12609	Education level paternal USA type	Indicator of the highest level of education completed by the participant/subject's father	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F1968-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53715	C53715	Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct age scaled count	Count of the Code transmission total correct age scaled number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C10506	C10506	Genetic diagnosis established indicator	Whether a genetic diagnosis for the disease/disorder was established	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53640	C53640	Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score B score	Score of Creature Counting timing score B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59309	C59309	Surgery procedure arthroplasty right hip perform type	Type of the surgical arthroplasty procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3050-C59207	C59207	Surgical procedure orthopedic knee type	Type of orthopedic surgical knee procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C56953	C56953	Cane stick use type	Type of cane which the participant/subject uses, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59269	C59269	Surgery procedure psoas lengthen open hip laterality type	Laterality type relative to the hip open surgical psoas lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22916	C22916	Ventricular dilatation extra axial qualitative assessment status	The status related to qualitative assessment of extra-axial ventricular/space dilation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2016-C56324	C56324	NIH Toolbox Cognitive Dimensional change card sort age 3 up raw score	The raw score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59361	C59361	Surgery procedure hindfoot arthrodesis ankle laterality type	Laterality type relative to the ankle surgical hindfoot arthrodesis procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22846	C22846	Modified Ashworth Scale - Limb tone testing left toes scale	The scale of limb tone testing for the left toes, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09588	C09588	Brief Pain Inventory (BPI) - pain sleep interference scale	Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59321	C59321	Surgery procedure anterior tibialis tendon transfer ankle laterality type	Laterality type relative to the ankle surgical anterior tibialis tendon transfer procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C08018	C08018	Surgery age value	Age of the participant/subject at the time of the selected surgical procedure	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58567	C58567	Dynamic upper extremity orthosis splint frequency use laterality type	Laterality type of dynamic upper extremity orthosis splints frequency used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22604	C22604	Therapy consultative frequency	The consultative frequency (less than once a month) of the patient or client's treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14445	C14445	Muscle tone assessment abnormality type	The muscle tone abnormality type	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20832	C20832	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble assessment past week scale	The scale which represents how often the participant had trouble sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.