CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20808 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restlessness assessment past week scale

The scale which represents how often the participant's sleep was restless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C22783 Risk Factor Questionnaire (RFQ) - age 2-5 sleep duration indicator

Hours of sleep the subject got in a week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

 Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep False Cerebral Palsy Cerebral Palsy
C58493 Activity Daily Living device type other text

Text describing the presence of any other activity of daily living device used

 Supplemental External Devices - CP False Cerebral Palsy Cerebral Palsy
C22906 Physical therapy intervention type

The type of intervention related to the physical therapy

 Supplemental Physical Therapy Individual Session False Cerebral Palsy Cerebral Palsy
C56430 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning percentile rank value

The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Cerebral Palsy Cerebral Palsy
C59347 Surgery procedure toe flexor lengthen tenotomy right ankle anatomic site

Anatomic site of the toe flexor lengthen tenotomy procedure performed on the right ankle

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle False Cerebral Palsy Cerebral Palsy
C22062 Modified Ashworth Scale - Limb tone testing left shoulder scale

The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale

 Supplemental Modified Ashworth Scale - Limb Tone Testing False Cerebral Palsy Cerebral Palsy
C22616 Orthopedic surgeon follow-up care indicator

Indicator for follow-up care from an orthopedic surgeon

 Supplemental Rehabilitation Therapies - Episodes of care False Cerebral Palsy Cerebral Palsy
C18945 Reflex plantar right response other text

The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C53637 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score

Value of Creature Counting Timing Score which is the total time (seconds) for correct items divided by TEAChCreatureCtngTotCorrCt (the Creature Counting Total correct count) as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C59240 Surgery procedure rectus femoris release transfer left knee type

Type of surgical rectus femoris tendon procedure performed on the left knee

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee False Cerebral Palsy Cerebral Palsy
C20816 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale

The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C08663 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence state text

Text specifying the participant's/subject's first state of residence

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History False Cerebral Palsy Cerebral Palsy
C58501 Transportation device type

Type for all transportation devices currently used by the participant/subject

 Supplemental External Devices - CP False Cerebral Palsy Cerebral Palsy
C22637 Speech language pathology focus area augmentative alternative communication intervention type

The type of intervention used for augmentative and alternative communication (AAC) as part of the speech and language therapy treatment session

 Supplemental Speech and Language Therapy Treatment Session False Cerebral Palsy Cerebral Palsy
C11061 Gait assessment result

Result of the gait assessment

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C56439 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 percentile rank value

The percentile rank the subject placed in with respect to Full Scale IQ for two subtests (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Cerebral Palsy Cerebral Palsy
C56319 NIH Toolbox Cognitive – List scoring working memory age 7 up computed score

The computed score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

 Supplemental NIH Toolbox Cognitive Battery False Cerebral Palsy Cerebral Palsy
C22665 Medical history chronic constipation indicator

Indicator of whether the participant/subject has/had chronic constipation

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C59355 Surgery procedure tibial derotational osteotomy external left ankle anatomic site

Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the left ankle

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle False Cerebral Palsy Cerebral Palsy
C22105 Modified Ashworth Scale - Limb tone testing left knee scale

The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale

 Supplemental Modified Ashworth Scale - Limb Tone Testing False Cerebral Palsy Cerebral Palsy
C09582 Brief Pain Inventory (BPI) - relief received percentage number

Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
C22597 Therapy participant count

The number of patients participating in the therapy session

 Supplemental Occupational Therapy Treatment Session: Cerebral Palsy False Cerebral Palsy Cerebral Palsy
C22888 Gait daily step count

The mean number of total steps taken in a full, usual day

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C59315 Surgery procedure gastrocnemius resection right ankle type

Type of gastrocnemius resection surgical procedure performed on the right ankle

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle False Cerebral Palsy Cerebral Palsy
Displaying 476 - 500 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.