CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C14536	C14536	Seizure diagnosis method type	Describes how the diagnosis of seizure was established	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1305-C14696	C14696	Berg Balance Scale (BBS) - stand sit scale	The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2015-C53668	C53668	Test of Everyday Attention for Children (TEA-Ch) - Score dual task B score	Score of the Score dual task B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59363	C59363	Surgery procedure hindfoot arthrodesis right ankle anatomic site	Anatomic site of hindfoot arthrodesis surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22848	C22848	Modified Ashworth Scale - Limb tone testing left shoulder muscle movement type	The type of the muscle movement of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2292-C00706	C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59323	C59323	Surgery procedure anterior tibialis tendon transfer left ankle split anatomic site	Anatomic site of the anterior tibialis tendon transfer left ankle split surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C12674	C12674	Surgical history procedure scoliosis type	Type of surgical procedure the participant/ subject has undergone for the treatment of scoliosis	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58569	C58569	Static upper extremity orthosis splint frequency use laterality type	Laterality type of static upper extremity orthosis splints frequency used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2291-C14447	C14447	Muscle strength abnormality assessment indicator	Whether the muscle strength assessment found any abnormalities	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C22650	C22650	Medical history conductive impairment indicator	Indicator of whether the participant/subject has been affected by conductive impairment	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22621	C22621	Pain scale type	The type of pain scale used to measure the patient or client's pain	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2016-C56298	C56298	NIH Toolbox Cognitive Cognition total composition age adjusted scale score	The total composite age adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C17465	C17465	Cardiovascular history abnormal echocardiogram other text	Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F1305-C14704	C14704	Berg Balance Scale (BBS) - alternate foot step up scale	The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2015-C53701	C53701	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation excess five percent cutoff coun	Count of the Walk, Don't Walk difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59398	C59398	Surgery procedure midfoot osteotomy ankle laterality type	Laterality type relative to the ankle surgical midfoot osteotomy procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F1046-C12793	C12793	Gene exon predicted reading frame type	Type of predicted reading frame	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2308-C22856	C22856	Modified Ashworth Scale - Limb tone testing left hip muscle movement type	The type of the muscle movement of limb tone testing for the left hip, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2292-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59331	C59331	Surgery procedure posterior tibialis tendon transfer left ankle split anatomic site	Anatomic site of the posterior tibialis tendon transfer left ankle split surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C18765	C18765	Surgical or therapeutic procedure other text	The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58578	C58578	Eat drink assistive device type other text	Text describing the presence of any other eating / drinking device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2291-C14461	C14461	Reflex assessment limb result	The results from reflex limb assessment	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.