CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2691-C58566	C58566	Orthosis type other text	Text describing the presence of any other orthotic device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2205-C22788	C22788	Risk Factor Questionnaire (RFQ) - age 12-17 moderate physical activity indicator	Hours spent doing moderate physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2203-C17477	C17477	Cardiovascular history congenital heart disease indicator	Indicator as to whether the participant/subject has or had a congenital heart disease	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2198-C12606	C12606	Health insurance private group type	Type of private or group health insurance, if any, in which the participant/subject is currently enrolled	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2290-C22911	C22911	Physical therapy orthoses type	The type of orthoses as related to the physical therapy	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C22662	C22662	Medical history recurrent lower respiratory tract infection indicator	Indicator of whether the participant/subject has been diagnosed with recurrent lower respiratory tract infections	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C06358	C06358	Diabetes mellitus type	Type of diabetes mellitus	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59392	C59392	Surgery procedure calcaneal osteotomy right ankle type	Type of calcaneal osteotomy surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22853	C22853	Modified Ashworth Scale - Limb tone testing right fingers muscle movement type	The type of the muscle movement of limb tone testing for the right fingers, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3051-C59328	C59328	Surgery procedure posterior tibialis tendon transfer ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle posterior tibialis tendon transfer surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2291-C21106	C21106	Gait assessment result other text	The free-text field to specify the other result of the gait assessment	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2691-C58574	C58574	Static lower extremity stretch orthosis splint use anatomic site laterality type	Side of the body of the anatomic site of the static lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2206-C08668	C08668	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence near farm fields indicator	Indicator as to whether the participant's/subject's first residence was located near farm fields (within 1/4mile)	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2203-C17486	C17486	Psychiatric history clinical depressive diagnosis indicator	Indicator as to whether the participant/subject had a depressive disorder diagnosis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C06058	C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2291-C14435	C14435	Nystagmus indicator	Involuntary movements of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C22670	C22670	Medical history Perinatal neurological event indicator	Indicator of whether participant had a perinatal neurological event	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C10521	C10521	Hearing affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's hearing	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59336	C59336	Surgery procedure posterior tibialis lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle posterior tibialis lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2292-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58621	C58621	Stand time use type	Type stand time used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59199	C59199	Gait deviation index orthotic condition score	Score of the Gait Deviation Index (GDI) derived from three-dimensional gait analysis (3DGA) that expresses overall gait pathology in the orthotic condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2207-C06025	C06025	Surgical or therapeutic procedure performed indicator	Indicator whether the participant/subject has undergone the selected surgical procedure	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2203-C19078	C19078	Cardiovascular history cardiac surgery other text	The free-text field related to 'Cardiovascular history cardiac surgery type' specifying other text. Type of cardiac surgery or mechanical intervention the participant/subject underwent	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3050-C59229	C59229	Surgery procedure hamstring lengthen open right knee anatomic site	Anatomic site of the surgical hamstring lengthening open procedure performed on the right knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.