CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 376 - 400 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14292 Durable medical equipment indicator

Indicates if the participant/ subject was provided with any durable medical equipment

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53226 Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value B score

Score of the Sky Search time per target B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56343 NIH Toolbox Cognitive – Picture sequence memory age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22646 Medical history retinopathy of prematurity indicator

Indicator of whether the participant/subject has been affected by Retinopathy of prematurity

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12608 Respiratory pattern status

Assessment of the respiratory breathing pattern

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C59401 Surgery procedure first metatarsal osteotomy arthrodesis ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle first metatarsal osteotomy/arthrodesis surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22618 Therapy session minute duration

The duration of the patient or client's treatment session in minutes

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22866 Imaging magnetic resonance imaging date and time

The date and time related to the magnetic resonance imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56295 NIH Toolbox Cognitive – Cognition total composition raw score

The total composite raw score for the Cognition field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17462 Cardiovascular history abnormal echocardiogram decreased left ventricular function indicator

Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting decreased left ventricular (LV) function

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C21121 Subject zip postal code number

The number of the subject/participant's zip/postal code

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C14701 Berg Balance Scale (BBS) - retrieve floor object scale

The scale for assessment of picking up object from the floor from a standing position based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C53697 Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk percentage value

Value of the Walk, Don't Walk percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C12790 Gene exon first deleted duplicated name

Identify first exon deleted or duplicated

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59292 Surgery procedure pelvic osteotomy left hip perform type other text

The free-text field related to "Surgery procedure pelvic osteotomy left hip perform type" specifying other text.

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22904 Physical therapy focus area type

The type related to physical therapy focus area

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59436 Passive range motion knee joint left side extension measurement value

Value of the left side knee joint extension passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C22655 Medical history respiratory distress syndrome indicator

Indicator of whether the participant/subject has been diagnosed with respiratory distress syndrome

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C59252 Surgery procedure adductor lengthen percutaneous left hip anatomic site

Anatomic site of the percutaneous surgical adductor lengthening procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22626 Face Legs Activity Cry Consolability (FLACC) - Activity score

The score of the activity portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22875 Imaging brain hemorrhage diagnosis indicator

The indicator related to brain hemorrhage being diagnosed from imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56303 NIH Toolbox Cognitive – Picture vocabulary age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17470 Cardiovascular history arrhythmia other text

Text description of any cardiac arrhythmia the participant/subject has or had in a form other than atrial fibrillation, atrial flutter, supraventricular tachycardia, ventricular tachycardia, or bradycardia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C17494 Delay language cognitive milestone indicator

Indicator as to whether the participant/subject has or had delayed acquisition of language or cognitive milestones, as diagnosed by a pediatrician or neurologist

Supplemental Motor Development History Cerebral Palsy Cerebral Palsy
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

Supplemental Social Status Cerebral Palsy Cerebral Palsy
Displaying 376 - 400 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.