CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19856 Medical history gastrostomy tube since last visit indicator

Indicator of Gtube placed since last study visit

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C53711 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time B score

Score of the Opposite Worlds Opposite World total time B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C22602 Therapy week frequency

The weekly frequency of the patient or client's treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C59361 Surgery procedure hindfoot arthrodesis ankle laterality type

Laterality type relative to the ankle surgical hindfoot arthrodesis procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C53637 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score

Value of Creature Counting Timing Score which is the total time (seconds) for correct items divided by TEAChCreatureCtngTotCorrCt (the Creature Counting Total correct count) as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C22846 Modified Ashworth Scale - Limb tone testing left toes scale

The scale of limb tone testing for the left toes, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09588 Brief Pain Inventory (BPI) - pain sleep interference scale

Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C00704 Alcohol drinking day average drinks consumed range

The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59321 Surgery procedure anterior tibialis tendon transfer ankle laterality type

Laterality type relative to the ankle surgical anterior tibialis tendon transfer procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C56439 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 percentile rank value

The percentile rank the subject placed in with respect to Full Scale IQ for two subtests (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C58567 Dynamic upper extremity orthosis splint frequency use laterality type

Laterality type of dynamic upper extremity orthosis splints frequency used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C14445 Muscle tone assessment abnormality type

The muscle tone abnormality type

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C22652 Medical history recurrent ear infection indicator

Indicator of whether the participant/subject has been affected by recurrent ear infections

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C53719 Test of Everyday Attention for Children (TEA-Ch) - Speech disturbance global assessment result

The condition and ability of speech disturbance

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C22623 Face Legs Activity Cry Consolability (FLACC) - Criteria type

The type of criteria being scored as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C17467 Cardiovascular history arrhythmia atrial flutter indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial flutter

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C53648 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement age scaled count

Count of Sky Search dual task decrement age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C00202 Education school participation status

Status of participant/subject's current attendance at school

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C59396 Surgery procedure calcaneal osteotomy right ankle sliding anatomic site

Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22854 Modified Ashworth Scale - Limb tone testing left fingers muscle movement type

The type of the muscle movement of limb tone testing for the left fingers, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C59329 Surgery procedure posterior tibialis tendon transfer ankle laterality type

Laterality type relative to the ankle surgical posterior tibialis tendon transfer procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C53215 Test of Everyday Attention for Children (TEA-Ch) -Data source

Source of whom provided data as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C58575 Activity daily living device type use indicator

Indicator whether the participant/subject currently uses the selected types of activity of daily living devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59192 Gait profile score barefoot condition left value

Value of the clinical index, Gait Profile Score (GPS), that is used to describe the gait pathology on the left side in the barefoot condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C14459 Reflex exam global assessment result

The global assessment of the ability and condition of reflexes

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
Displaying 276 - 300 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.