CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C19856	C19856	Medical history gastrostomy tube since last visit indicator	Indicator of Gtube placed since last study visit	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53711	C53711	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time B score	Score of the Opposite Worlds Opposite World total time B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2200-C22602	C22602	Therapy week frequency	The weekly frequency of the patient or client's treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3051-C59361	C59361	Surgery procedure hindfoot arthrodesis ankle laterality type	Laterality type relative to the ankle surgical hindfoot arthrodesis procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2015-C53637	C53637	Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score	Value of Creature Counting Timing Score which is the total time (seconds) for correct items divided by TEAChCreatureCtngTotCorrCt (the Creature Counting Total correct count) as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2308-C22846	C22846	Modified Ashworth Scale - Limb tone testing left toes scale	The scale of limb tone testing for the left toes, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09588	C09588	Brief Pain Inventory (BPI) - pain sleep interference scale	Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59321	C59321	Surgery procedure anterior tibialis tendon transfer ankle laterality type	Laterality type relative to the ankle surgical anterior tibialis tendon transfer procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F1968-C56439	C56439	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 percentile rank value	The percentile rank the subject placed in with respect to Full Scale IQ for two subtests (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58567	C58567	Dynamic upper extremity orthosis splint frequency use laterality type	Laterality type of dynamic upper extremity orthosis splints frequency used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2291-C14445	C14445	Muscle tone assessment abnormality type	The muscle tone abnormality type	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C22652	C22652	Medical history recurrent ear infection indicator	Indicator of whether the participant/subject has been affected by recurrent ear infections	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53719	C53719	Test of Everyday Attention for Children (TEA-Ch) - Speech disturbance global assessment result	The condition and ability of speech disturbance	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2200-C22623	C22623	Face Legs Activity Cry Consolability (FLACC) - Criteria type	The type of criteria being scored as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C17467	C17467	Cardiovascular history arrhythmia atrial flutter indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial flutter	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53648	C53648	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement age scaled count	Count of Sky Search dual task decrement age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2198-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F3051-C59396	C59396	Surgery procedure calcaneal osteotomy right ankle sliding anatomic site	Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22854	C22854	Modified Ashworth Scale - Limb tone testing left fingers muscle movement type	The type of the muscle movement of limb tone testing for the left fingers, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3051-C59329	C59329	Surgery procedure posterior tibialis tendon transfer ankle laterality type	Laterality type relative to the ankle surgical posterior tibialis tendon transfer procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2015-C53215	C53215	Test of Everyday Attention for Children (TEA-Ch) -Data source	Source of whom provided data as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58575	C58575	Activity daily living device type use indicator	Indicator whether the participant/subject currently uses the selected types of activity of daily living devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59192	C59192	Gait profile score barefoot condition left value	Value of the clinical index, Gait Profile Score (GPS), that is used to describe the gait pathology on the left side in the barefoot condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2291-C14459	C14459	Reflex exam global assessment result	The global assessment of the ability and condition of reflexes	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.