CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22621 Pain scale type

The type of pain scale used to measure the patient or client's pain

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59423 Passive range motion hip joint right side abduction measurement value

Value of the right side hip joint abduction passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C22648 Medical history optic neuropathy indicator

Indicator of whether the participant/subject has been affected by optic neuropathy

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C59403 Surgery procedure first metatarsal osteotomy arthrodesis left ankle type

Anatomic site of first metatarsal osteotomy/arthrodesis surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22620 Child Effort Rating - Overall scale

The scale representing the overall rating for "Child Effort" across the entire session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22868 Imaging magnetic resonance imaging signal abnormality present indicator

The indicator related to magnetic resonance imaging signal abnormalities being present

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C22862 Modified Ashworth Scale - Limb tone testing right toes muscle movement type

The type of the muscle movement of limb tone testing for the right toes, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C56297 NIH Toolbox Cognitive – Cognition total composition unadjusted scale score

The total composite unadjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17464 Cardiovascular history abnormal echocardiogram left ventricular hypertrophy indicator

Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting left ventricular hypertrophy (LVH)

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22587 Paternal birth date

Date (and time, if applicable and known) the father of the participant/subject was born

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C53700 Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation from first count

Count of the Walk, don't Walk difference from First (Version A) Walk, Don't Walk total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C12690 Gene name

Name of the gene analyzed

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59294 Surgery procedure hip open reduction perform indicator

Indicator of whether the participant/subject has undergone the hip open reduction surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59441 Passive range motion knee joint left side popliteal angle measurement value

Value of the left side knee joint popliteal angle passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C22657 Medical history recurrent pneumonia indicator

Indicator of whether the participant/subject has been diagnosed with recurrent pneumonia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C59254 Surgery procedure adductor lengthen percutaneous left hip anatomic site other text

The free-text field related to "Surgery procedure adductor lengthen percutaneous left hip anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22628 Face Legs Activity Cry Consolability (FLACC) - Consolability score

The score of the consolability portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22877 Imaging brain infarction diagnosis indicator

The indicator related to brain infarction being diagnosed from imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58656 Cerebral palsy distribution primarily unilateral type

Type of CP distribution primarily unilateral subtype experienced by the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C56305 NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17472 Cardiovascular history arrhythmia ventricular tachycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C17497 Gait abnormal when began walking indicator

Indicator as to whether the participant/subject had a gait abnormality at the time they began walking, as noted by parents or a physician

Supplemental Motor Development History Cerebral Palsy Cerebral Palsy
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C22793 Vaccine history report informant specify type

The type of informant the vaccine history report was collected from

Supplemental Vaccination History Cerebral Palsy Cerebral Palsy
C14700 Berg Balance Scale (BBS) - reach forward scale

The scale for assessment of reaching forward with outstretched arm while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
Displaying 251 - 275 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.