CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 26 - 50 of 1889
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core Demographics Cerebral Palsy Cerebral Palsy
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle.

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Cerebral Palsy Cerebral Palsy
C10615 Clinical event or milestone type

Type of clinical event or milestone pertinent to the disease or disorder

Core Motor Development History Cerebral Palsy Cerebral Palsy
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

Core Medical History Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C52024 Child and Adolescent Scale of Participation (CASP) - Relationship text

Text describing your relationship to the participant/subject, as part of the Child and Adolescent Scale of Participation (CASP).

Core Child and Adolescent Scale of Participation (CASP) Cerebral Palsy Cerebral Palsy
C00035 Gender type

Self-reported gender of the participant/subject.

Core Demographics Cerebral Palsy Cerebral Palsy
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing.

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

Core Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C10813 Adopted indicator

Whether the subject/participant was adopted

Core Family History Cerebral Palsy Cerebral Palsy
C10616 Clinical event or milestone achieved indicator

Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder

Core Motor Development History Cerebral Palsy Cerebral Palsy
C00315 Medical history global assessment indicator

Indicator of whether the participant/subject has a history of any medical problems/conditions

Core Medical History Cerebral Palsy Cerebral Palsy
C00005 Birth country name

Name for country where the participant/subject was born

Core Demographics Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Demographics Cerebral Palsy Cerebral Palsy
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

Core Vital Signs Cerebral Palsy Cerebral Palsy
C12658 Clinical event or milestone achieved age value

Age when the participant/subject achieved the clinical event or milestone

Core Motor Development History Cerebral Palsy Cerebral Palsy
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's/subject's medical history

Core Medical History Cerebral Palsy Cerebral Palsy
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

Core Vital Signs Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Cerebral Palsy Cerebral Palsy
Displaying 26 - 50 of 1889

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.