CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2295-C19247	C19247	Subject ID	Subject identification ID	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2198-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Core	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2293-C19247	C19247	Subject ID	Subject identification ID	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2203-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant/subject is ongoing	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2204-C17681	C17681	Family history collection source	The source of collected family history data	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
F2295-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2197-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
F1016-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F2295-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2197-C10676	C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2203-C00321	C00321	Medical history for body system indicator	Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17402	C17402	Site name	The name of the site for the study	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2295-C01535	C01535	Respiratory rate	Rate of the participant/subject's breathing (inhalation and exhalation)	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F1016-C10970	C10970	Manual muscle testing date and time	Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F2203-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2204-C19247	C19247	Subject ID	Subject identification ID	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
F2203-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Core	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2294-C17402	C17402	Site name	The name of the site for the study	Core	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F1016-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F2207-C19247	C19247	Subject ID	Subject identification ID	Core	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2203-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.