CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C21117	Subject name	Name of subject/participant	Core	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
C17402	Site name	The name of the site for the study	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's/subject's medical history	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Core	Child and Adolescent Scale of Participation (CASP)	True	Cerebral Palsy	Cerebral Palsy
C19247	Subject ID	Subject identification ID	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Core	Social Status	False	Cerebral Palsy	Cerebral Palsy
C19247	Subject ID	Subject identification ID	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
C17681	Family history collection source	The source of collected family history data	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
C17402	Site name	The name of the site for the study	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant/subject is ongoing	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
C10970	Manual muscle testing date and time	Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
C19500	Assessment performed date	The date of assessment of the examination being performed	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
C00321	Medical history for body system indicator	Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
C01535	Respiratory rate	Rate of the participant/subject's breathing (inhalation and exhalation)	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
C19247	Subject ID	Subject identification ID	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Cerebral Palsy	Cerebral Palsy
C52022	Child and Adolescent Scale of Participation (CASP) - Child name	Name of subject/participant, as part of the Child and Adolescent Scale of Participation (CASP)	Core	Child and Adolescent Scale of Participation (CASP)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.