CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01541 Weight measurement

Measurement of participant's weight

Core Vital Signs Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Physical Examination Cerebral Palsy Cerebral Palsy
C10615 Clinical event or milestone type

Type of clinical event or milestone pertinent to the disease or disorder

Core Motor Development History Cerebral Palsy Cerebral Palsy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Core Social Status Cerebral Palsy Cerebral Palsy
C00321 Medical history for body system indicator

Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system

Core Medical History Cerebral Palsy Cerebral Palsy
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

Core Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Cerebral Palsy Cerebral Palsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Cerebral Palsy Cerebral Palsy
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Core Demographics Cerebral Palsy Cerebral Palsy
C10616 Clinical event or milestone achieved indicator

Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder

Core Motor Development History Cerebral Palsy Cerebral Palsy
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Core Medical History Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Family History Cerebral Palsy Cerebral Palsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Cerebral Palsy Cerebral Palsy
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

Core Vital Signs Cerebral Palsy Cerebral Palsy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Cerebral Palsy Cerebral Palsy
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Core Family History Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C12658 Clinical event or milestone achieved age value

Age when the participant/subject achieved the clinical event or milestone

Core Motor Development History Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

Core Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
Displaying 1 - 25 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.