CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 2138
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C01535 Respiratory rate

Rate of the participant/subject's breathing (inhalation and exhalation)

Core Vital Signs Cerebral Palsy Cerebral Palsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Cerebral Palsy Cerebral Palsy
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Core Medical History Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Family History Cerebral Palsy Cerebral Palsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Cerebral Palsy Cerebral Palsy
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Core Physical Examination Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

Core Physical Examination Cerebral Palsy Cerebral Palsy
C52022 Child and Adolescent Scale of Participation (CASP) - Child name

Name of subject/participant, as part of the Child and Adolescent Scale of Participation (CASP)

Core Child and Adolescent Scale of Participation (CASP) Cerebral Palsy Cerebral Palsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Cerebral Palsy Cerebral Palsy
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

Core Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event

Core Family History Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Physical Examination Cerebral Palsy Cerebral Palsy
C52023 Child and Adolescent Scale of Participation (CASP) - Relative name

Name of participant/subject's relative, or the person filling out the scale, as part of the Child and Adolescent Scale of Participation (CASP)

Core Child and Adolescent Scale of Participation (CASP) Cerebral Palsy Cerebral Palsy
C01541 Weight measurement

Measurement of participant's/subject's weight

Core Vital Signs Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Cerebral Palsy Cerebral Palsy
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C10615 Clinical event or milestone type

Type of clinical event or milestone pertinent to the disease or disorder

Core Motor Development History Cerebral Palsy Cerebral Palsy
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

Core Medical History Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
Displaying 1 - 25 of 2138

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.