CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 13 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C09952	World Health Organization Quality of Life (WHOQOL-BREF) - living place scale	Scale used to assess how satisfied the participant is with his living space, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09933	World Health Organization Quality of Life (WHOQOL-BREF) - medical treatment to function scale	Scale used to assess how much medical treatment is needed to function in daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09954	World Health Organization Quality of Life (WHOQOL-BREF) - mode transportation scale	Scale used to assess transportation mode satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09955	World Health Organization Quality of Life (WHOQOL-BREF) - negative feeling scale	Scale used to assess how often the participant experiences negative feelings, such as blue mood, despair, anxiety, depression, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09949	World Health Organization Quality of Life (WHOQOL-BREF) - personal relationship scale	Scale used to assess personal relationship satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09938	World Health Organization Quality of Life (WHOQOL-BREF) - physical enviornment health scale	Scale used to assess the health of the participant's physical environment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09932	World Health Organization Quality of Life (WHOQOL-BREF) - physical pain prevent work scale	Scale used to assess the extent to which pain prevents the participant from doing what needs to be done, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09930	World Health Organization Quality of Life (WHOQOL-BREF) - rate quality life scale	Scale used to assess quality of life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09937	World Health Organization Quality of Life (WHOQOL-BREF) - safe feel daily scale	Scale used to assess how safe the participant feels on a daily basis, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09950	World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale	Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09945	World Health Organization Quality of Life (WHOQOL-BREF) - sleep satisfaction scale	Scale used to assess sleep satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09957	World Health Organization Quality of Life (WHOQOL-BREF) - time needed value	Time it took to complete the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy
C09947	World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale	Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.