CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2291-C14459	C14459	Reflex exam global assessment result	The global assessment of the ability and condition of reflexes	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C18946	C18946	Reflex plantar left response other text	The free-text field related to 'Reflex plantar left response result' specifying other text. The results from reflex plantar response on the left side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14463	C14463	Reflex plantar left response result	The results from reflex plantar response on the left side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C18945	C18945	Reflex plantar right response other text	The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14462	C14462	Reflex plantar right response result	The results from reflex plantar response on the right side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2201-C22615	C22615	Rehabilitation physician follow-up care indicator	Indicator for follow-up care from a rehabilitation care physician	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2201-C22607	C22607	Rehabilitation start age value	The age of the participant/subject at the start of the episode of rehabilitation	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2295-C12608	C12608	Respiratory pattern status	Assessment of the respiratory breathing pattern	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2295-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2814-C58673	C58673	Respiratory ventilation support assist indicator	Indicator of whether respiratory support and ventilation assistance of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58675	C58675	Respiratory ventilation support assist other type text	Text describing another type of respiratory ventilation or support assist used by participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58674	C58674	Respiratory ventilation support assist type	Type of respiratory support / ventilation assist type used by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2205-C22788	C22788	Risk Factor Questionnaire (RFQ) - age 12-17 moderate physical activity indicator	Hours spent doing moderate physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2205-C22789	C22789	Risk Factor Questionnaire (RFQ) - age 12-17 sleep duration indicator	Hours of sleep the subject got in a week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2205-C22787	C22787	Risk Factor Questionnaire (RFQ) - age 12-17 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2205-C22782	C22782	Risk Factor Questionnaire (RFQ) - age 2-5 moderate physical activity indicator	Hours spent doing moderate physical activities by the subject in an average week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2205-C22783	C22783	Risk Factor Questionnaire (RFQ) - age 2-5 sleep duration indicator	Hours of sleep the subject got in a week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2205-C22785	C22785	Risk Factor Questionnaire (RFQ) - age 6-11 moderate physical activity indicator	Hours spent doing moderate physical activities by the subject in an average week between the ages of 6 and 11, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2205-C22786	C22786	Risk Factor Questionnaire (RFQ) - age 6-11 sleep duration indicator	Hours of sleep the subject got in a week between the ages of 6 and 11, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2205-C22784	C22784	Risk Factor Questionnaire (RFQ) - age 6-11 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 6 and 11, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2205-C22781	C22781	Risk Factor Questionnaire (RFQ) - ages 2-5 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2206-C08665	C08665	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence country text	Text specifying the participant's/subject's first country of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2206-C08666	C08666	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence location type	Type describing the participant's/subject's first location of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2206-C08668	C08668	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence near farm fields indicator	Indicator as to whether the participant's/subject's first residence was located near farm fields (within 1/4mile)	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2206-C08670	C08670	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use frequency	Frequency of pesticide spraying near the participant's/subject's first residence during the span of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.