CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 351 - 375 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C14543	C14543	Genetic disorder type	Whether the participant/subject has a known single gene disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2814-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2289-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2202-C22899	C22899	Gross Motor Function Classification System (GMFCS) - Level scale	The scale level as reference to the Gross Motor Function Classification System (GMFCS)	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2290-C22899	C22899	Gross Motor Function Classification System (GMFCS) - Level scale	The scale level as reference to the Gross Motor Function Classification System (GMFCS)	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2293-C17498	C17498	Hand preference before 12 month age indicator	Indicator as to whether the participant/subject had a hand preference before 12 months of age	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F1968-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2294-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Core	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2295-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2295-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2198-C18684	C18684	Health insurance other text	The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2198-C18861	C18861	Health insurance private group other text	The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2198-C12606	C12606	Health insurance private group type	Type of private or group health insurance, if any, in which the participant/subject is currently enrolled	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2198-C00226	C00226	Health insurance type	Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2203-C10521	C10521	Hearing affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's hearing	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2814-C58671	C58671	Hearing impairment indicator	Indicator of whether participant/subject has hearing impairment	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58672	C58672	Hearing impairment severity type	Type of hearing impairment severity of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2295-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2295-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2295-C12669	C12669	Height or length measurement type	Type of height or length measurement taken	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2295-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2814-C58657	C58657	Hemiplegia laterality type	Hemiplegia laterality of interest	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C08177	C08177	Hemorrhage indicator	Indicator of the presence of cerebral hemorrhages, regardless of size in any region of the brain	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C22614	C22614	Home medical equipment other text	The free-text field related to Home medical equipment type' specifying other text. If the participant/ subject was provided with any home medical equipment, describes the type(s) of equipment received	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2201-C22613	C22613	Home modification durable medical equipment type	If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy

Displaying 351 - 375 of 1249

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.