CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C06192 Fecal incontinence past three month average frequency

Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C17497 Gait abnormal when began walking indicator

Indicator as to whether the participant/subject had a gait abnormality at the time they began walking, as noted by parents or a physician

Supplemental Motor Development History Cerebral Palsy Cerebral Palsy
C21107 Gait abnormality assessment other text

The free-text field for other type of abnormal gait

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C14465 Gait abnormality assessment type

Type of abnormal gait

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C11061 Gait assessment result

Result of the gait assessment

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C21106 Gait assessment result other text

The free-text field to specify the other result of the gait assessment

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59195 Gait cadence barefoot condition measurement

Count of the steps per minute in the barefoot condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C59204 Gait cadence orthotic condition measurement

Count of the steps per minute in the orthotic condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C22888 Gait daily step count

The mean number of total steps taken in a full, usual day

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59190 Gait deviation index barefoot condition score

Score of the Gait Deviation Index (GDI) derived from three-dimensional gait analysis (3DGA) that expresses overall gait pathology in the barefoot condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C59199 Gait deviation index orthotic condition score

Score of the Gait Deviation Index (GDI) derived from three-dimensional gait analysis (3DGA) that expresses overall gait pathology in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C59198 Gait orthosis type text

The free-text field related to the type of orthoses currently used by the participant/subject

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C22887 Gait oxygen cost walking value

The metabolic cost of steady-state walking value (mL/kg/m)

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59192 Gait profile score barefoot condition left value

Value of the clinical index, Gait Profile Score (GPS), that is used to describe the gait pathology on the left side in the barefoot condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C59191 Gait profile score barefoot condition overall value

Value of the clinical index, Gait Profile Score (GPS), that is used to describe the overall gait pathology in the barefoot condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C59193 Gait profile score barefoot condition right value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the right side in the barefoot condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C59201 Gait profile score orthotic condition left value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the left side in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C59200 Gait profile score orthotic condition overall value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the overall gait pathology in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C59202 Gait profile score orthotic condition right value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the right side in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C59245 Gait step length barefoot condition left measurement

Value of the distance measured in meters between the point of initial contact of the left foot and the point of initial contact of the right foot in the barefoot condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C59246 Gait step length barefoot condition right measurement

Value of the distance measured in meters between the point of initial contact of the right foot and the point of initial contact of the left foot in the barefoot condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C59247 Gait step length orthotic condition left measurement

Value of the distance measured in meters between the point of initial contact of the left foot and the point of initial contact of the right foot in the orthotic condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C59248 Gait step length orthotic condition right measurement

Value of the distance measured in meters between the point of initial contact of the right foot and the point of initial contact of the left foot in the orthotic condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C59196 Gait stride length barefoot condition left measurement

Value of the distance measured in meters from heel contact to heel contact on the left foot in the barefoot condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
Displaying 276 - 300 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.