CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3053-C59187	C59187	Pelvic obliquity right measurement	The measurement in degrees of the right pelvic obliquity	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3053-C59186	C59186	Pelvic obliquity left measurement	The measurement in degrees of the left pelvic obliquity	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3053-C59185	C59185	Migration percentage right value	The value of the right migration percentage	Supplemental-Highly Recommended	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3053-C59184	C59184	Migration percentage left value	The value of the left migration percentage	Supplemental-Highly Recommended	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3053-C59183	C59183	Acetabular index right measurement	The measurement in degrees of the right acetabular index	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3053-C59182	C59182	Acetabular index left measurement	The measurement in degrees of the left acetabular index	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3052-C59039	C59039	Surgical procedure orthopedic hip type	Type of orthopedic surgical hip procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3054-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F3054-C58879	C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Cerebral Palsy	Cerebral Palsy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Cerebral Palsy	Cerebral Palsy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2814-C58675	C58675	Respiratory ventilation support assist other type text	Text describing another type of respiratory ventilation or support assist used by participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58674	C58674	Respiratory ventilation support assist type	Type of respiratory support / ventilation assist type used by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58673	C58673	Respiratory ventilation support assist indicator	Indicator of whether respiratory support and ventilation assistance of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58672	C58672	Hearing impairment severity type	Type of hearing impairment severity of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58671	C58671	Hearing impairment indicator	Indicator of whether participant/subject has hearing impairment	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58670	C58670	Visual impairment severity type	Type of visual impairment severity of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58669	C58669	Visual impairment indicator	Indicator of whether participant has visual impairment	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58668	C58668	Intellectual impairment type	Type of intellectual impairment of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58667	C58667	Eating drinking type	Type of eating and drinking as indicated by the Eating and Drinking Classification System (EDACS)	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58666	C58666	Communication type	Type of communication as indicated by the Communication Function Classification System (CFCS)	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58665	C58665	Cerebral palsy upper limb function type	Type of upper limb function as indicated by the Manual Ability Classification System (MACS) scale	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2814-C58664	C58664	Cerebral palsy fine motor function type	Type of fine motor function as indicated by the Bimanual Fine Motor Function (BFMF) scale	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy

Displaying 226 - 250 of 1249

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.