CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1051 - 1075 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10678 Employment full-time status

Status of participant/subject's current full-time employment

 Supplemental Social Status False Cerebral Palsy Cerebral Palsy
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

 Core Demographics False Cerebral Palsy Cerebral Palsy
C10675 Country origin maternal name

Mother's country or countries of origin

 Supplemental Demographics False Cerebral Palsy Cerebral Palsy
C10616 Clinical event or milestone achieved indicator

Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder

 Core Motor Development History False Cerebral Palsy Cerebral Palsy
C10615 Clinical event or milestone type

Type of clinical event or milestone pertinent to the disease or disorder

 Core Motor Development History False Cerebral Palsy Cerebral Palsy
C10609 Hospitalization reason

Reason why the participant/subject was hospitalized, excluding all surgeries

 Supplemental Surgical and Hospitalization History False Cerebral Palsy Cerebral Palsy
C10556 Pregnant ever indicator

Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10543 Cancer head or neck radiation treatment indicator

Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10541 Diabetes treatment type

Type of treatment the participant/subject is receiving or has received for diabetes mellitus

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10539 Diabetes first diagnosis age value

Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10522 Speech affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's speech

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10521 Hearing affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's hearing

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10520 Vision affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's vision

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10516 Scoliosis maximum spine curvature measurement

The maximum curvature of the spine in degrees for a participant/subject who has been diagnosed with scoliosis

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C09589 Brief Pain Inventory (BPI) - pain enjoyment interference scale

Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
C09588 Brief Pain Inventory (BPI) - pain sleep interference scale

Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
C09587 Brief Pain Inventory (BPI) - pain relations interference scale

Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
C09586 Brief Pain Inventory (BPI) - pain normal work interference scale

Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
C09585 Brief Pain Inventory (BPI) - pain walking ability interference scale

Scale assessing how much the pain has interfered with walking ability, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
C09584 Brief Pain Inventory (BPI) - pain mood interference scale

Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
C09583 Brief Pain Inventory (BPI) - pain general activity interference scale

Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
Displaying 1051 - 1075 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.