CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10564 Lab blood specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of blood lab specimen

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10896 Pregnancy test performed indicator

Indicator as to whether or not a pregnancy test was performed on the participant/subject

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17814 Lab test antibody result

Result of the antibody laboratory test

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17815 Lab test location

Location the lab tests were completed

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17816 Lab test not performed text

Text representing explanation as to why the lab test hasn't been performed on the participant/subject

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10670 Muscle biopsy performed indicator

Indicator as to whether or not a muscle biopsy was performed on the participant/subject

 Exploratory Tissue Based Marker Collection False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10671 Muscle biopsy limb affected clinically indicator

Indicator as to whether or not the limb from which the biopsy was taken was affected clinically

 Exploratory Tissue Based Marker Collection False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10672 Electromyography (EMG) result

Result of the electromyography (EMG) testing performed on the participant/subject

 Exploratory Tissue Based Marker Collection False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10673 Tissue skin biopsy performed indicator

Indicator as to whether or not a skin biopsy was performed on the participant/subject

 Exploratory Tissue Based Marker Collection False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10674 Tissue skin biopsy collection anatomic site text

Text representing the specification of the skin biopsy collection site

 Exploratory Tissue Based Marker Collection False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17830 Muscle biobsy limb affected clinical text

Text representing details on how the limb, from which the biopsy was taken, was clinically affected

 Supplemental Tissue Based Marker Collection False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10564 Lab blood specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of blood lab specimen

 Supplemental Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10821 Food last consumed date and time

Date (and time, if applicable and known) the participant/subject last ate food

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10822 Caffeine last consumed date and time

Date (and time, if applicable and known) the participant/subject last drank or otherwise consumed caffeine

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10823 Alcohol last consumed date and time

Date (and time, if applicable and known) the participant/subject last drank alcohol

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10824 Medication withheld prior to sample collection indicator

Indicator as to whether or not medications were withheld from the participant/subject prior to sample collection

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10825 Medication withheld prior sample collection name

Name of medication withheld prior to sample collection

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11137 Medication withheld duration

Duration, in hours and minutes, medication withheld from the participant/subject

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10890 Resting energy expenditure measurement

Resting Energy Expenditure (REE) is a measure of the calories (energy) burned to maintain bodily functions in the alert, resting (physically inactive) state

 Exploratory Resting Energy Expenditure False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 126 - 150 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.