CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0954-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C00031	C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Core	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C11138	C11138	Country of origin paternal ISO code	The ISO 3166-1 alpha-2 code for the participant's father's country of origin	Supplemental	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C11139	C11139	Country of origin maternal ISO code	The ISO 3166-1 alpha-2 code for the participant's mother's country of origin	Supplemental	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0955-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0955-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Core	Social Status	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0955-C11115	C11115	Religion type	Religion the participant/subject practices or with which he/she identifies	Supplemental	Social Status	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00321	C00321	Medical history for body system indicator	Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C10980	C10980	Childbearing potential indicator	Indicator of whether the participant is of childbearing potential	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C10981	C10981	Birth control method type	The participant's method of birth control	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C10982	C10982	Childbearing potential sterile reason	Explanation of why the female participant/subject is not of childbearing potential	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C10983	C10983	Childbearing potential surgically sterile type	Type of surgical procedure that rendered the participant/subject sterile	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C17770	C17770	Allergy diagnosis indicator	Indicator of whether the participant/subject has allergies	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.