CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 708
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08002 Family history relative type biological sample identifier number

Identification (ID) number assigned to family member's biological sample in repository

 Supplemental Family History False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11121 Bulbar upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the bulbar region

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

 Core Demographics False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17826 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10946 Imaging spectroscopic chemical shift imaging slice coverage anatomical site

The anatomic site in which a chemical shift imaging (CSI) slice or slab is located and its extent of spatial coverage

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11998 Timed 25-Foot Walk (T25FW) - trial 2 duration

The time it takes the participant/subject to walk 25 feet, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17795 Imaging diffusion third b value

Value, in square millimeters per second, of the third b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10764 Electromyography fasciculations presence indicator

Indicator whether there are fasciculations present at rest in at least one muscle of the limb studied with electromyography (EMG)

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10671 Muscle biopsy limb affected clinically indicator

Indicator as to whether or not the limb from which the biopsy was taken was affected clinically

 Exploratory Tissue Based Marker Collection False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11061 Gait assessment result

Result of the gait assessment

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10632 Diary day cramps status

Describes whether the participant/subject experienced cramps on a particular day

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10823 Alcohol last consumed date and time

Date (and time, if applicable and known) the participant/subject last drank alcohol

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09331 Geriatric Depression Scale (GDS) - worthless feeling indicator

Indicator whether over the past week respondent felt worthless the way she or he is now, as part of the Geriatric Depression Scale (short form) (GDSSF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10791 Electrical impedance myography muscle studied name

Name of the muscle studied using electrical impedance myography (EIM)

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10867 Dynamometry hand held muscle test performed anatomic site

The type of muscle tested using hand held dynamometry

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11022 Polysomnography oxygen saturation below 89 percent time duration

Duration total of O2 saturation (SPO2) below 89% in nocturnal oximetry, as part of nocturnal oximetry

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17807 Imaging parallel acquisition details text

Text description of any additional details about the parallel acquisition used, if any, in the MRI sequence being reported

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11029 Neuromuscular exam cranial jaw jerk result

Result of jaw jerk evaluation

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11044 Reflex normal indicator

Indicator whether the reflexes are normal in the anatomic site examined

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17821 Left upper extremity lower motor neuron electromyogram clinical indicator

Indicator of whether an electromyogram (EMG) of the left upper extremity (LUE) region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and renovation in two muscles innovated by different peripheral nerve and different nerve roots

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10997 Cardiovascular left ventricular systolic pressure measurement

Value, in mmHg, of the left ventricular systolic pressure, as part of myocardial oxygen consumption

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10578 Imaging label pulse duration

Duration in milliseconds of the labeling pulse in imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09645 Fatigue Severity Scale (FSS) - interfere duty responsibility scale

Scale used to describe the extent to which fatigue interfered with the patient's ability to carry out certain duties and responsibilities, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 176 - 200 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.