CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1005-C21906	C21906	Geriatric Depression Scale (GDS) Long Form - Past worry indicator	Indicator whether the subject is worried about the past a lot (long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C10838	C10838	Imaging voxel size axis 1 measurement	Measurement, in millimeters, of the axis 1 dimension of the voxel within the anatomy of interest	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0972-C10568	C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11920	C11920	Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score	Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1591-C54460	C54460	Functional Gait Assessment (FGA) - Gait task eye closed score	Score for the subject/particpant's performance on the Gait With Eyes Closed task, as part of the Functional Gait Assessment (FGA)	Supplemental	Dynamic Gait Index (DGI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C11114	C11114	Pulmonary function sniff nasal inspiratory pressure (SNIP) congestion indicator	Indicator as to whether or not the participant/subject has nasal congestion when Sniff Nasal Inspiratory Pressure (SNIP) was measured	Supplemental	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10568	C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1005-C21915	C21915	Geriatric Depression Scale (GDS) Long Form - Decision easy indicator	Indicator whether the subject feels it is easy to make decisions(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C10958	C10958	Spectroscopy spectral points count	Count of the spectroscopic sequence parameter of spectral points used in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11928	C11928	Modified Fatigue Impact Scale (MFIS) - limit physical activity score	Scale for having limited physical activities as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1591-C54468	C54468	Dynamic Gait Index (DGI) - Total score	Total score for the subject/participant's performance on all tasks, as part of the Dynamic Gait Index (DGI)	Supplemental	Dynamic Gait Index (DGI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11060	C11060	Gait type	Type of gait examined	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1024-C17541	C17541	Tardieu Scale assistive device text	Text identifying an assistive device used by the participant/subject for an immovable joint in a limb	Supplemental	Tardieu Scale	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0960-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1017-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Fixed Dynamometry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0991-C12030	C12030	Schwab and England Activities of Daily Living (ADL) - Patient assessment scale	Assess a person's ability to perform daily activities in terms of speed and independence through a percentage figure	Supplemental	Schwab and England Activities of Daily Living Scale (ADL-Scale)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C18818	C18818	Childbearing potential surgically sterile other text	The free-text field related to 'Childbearing potential surgically sterile type' specifying other text. Type of surgical procedure that rendered the participant/subject sterile	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C18693	C18693	Imaging contrast agent method other text	The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10787	C10787	MUNE area studied laterality type	Side of the section of the body studied using the MUNE (motor unit number estimation) technique	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C10570	C10570	Imaging contrast agent used indicator	Indicator of whether an imaging contrast agent was used for the scan	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0962-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1027-C11998	C11998	Timed 25-Foot Walk (T25FW) - trial 2 duration	The time it takes the participant/subject to walk 25 feet, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1005-C09335	C09335	Geriatric Depression Scale (GDS) - activity drop indicator	Indicator whether respondent has dropped many of his or her activities over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0957-C10814	C10814	Parents biologically related indicator	The indicator whether the subject's/participant's parents are biologically related	Supplemental	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.