CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0954-C11139	C11139	Country of origin maternal ISO code	The ISO 3166-1 alpha-2 code for the participant's mother's country of origin	Supplemental	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10579	C10579	Imaging post-label delay duration	Duration in milliseconds of the post-labeling delay in imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10568	C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C10967	C10967	Spectroscopy metabolite concentration unit type	Type of the reported metabolite quantitation values in absolute unit (in mM or millimoles/liter) or in institutional unit (that is, not measuring T1 and T2 values of the metabolites, thereby not accounting for the signal loss due to TR and TE values u	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C17854	C17854	Right lower extremity upper motor neuron clinical indicator	Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the right lower extremity (RLE) region	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11914	C11914	Modified Fatigue Impact Scale (MFIS) - pace physical activity score	Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0959-C10850	C10850	NINDS Human Genetics DNA and Cell Line Repository blood sample indicator	Indicator whether the participant/subject gave a blood sample to the NINDS Human Genetics DNA and Cell Line Repository (a.k.a., Coriell repository)	Supplemental	Genetics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0972-C10932	C10932	Imaging lesion found indicator	Indicator of whether lesions are found in the imaging study	Supplemental	Magnetic Resonance Imaging (MRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C10983	C10983	Childbearing potential surgically sterile type	Type of surgical procedure that rendered the participant/subject sterile	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10599	C10599	Parameter map calculation type	Type(s) of parameter maps calculated for the perfusion MRI scan being reported	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11922	C11922	Modified Fatigue Impact Scale (MFIS) - physical uncomfort score	Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10836	C10836	Imaging functional task type	The functional status of the participant/subject when tasks are of a certain type	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C18714	C18714	Imaging radio frequency coil channel count other text	The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1591-C54462	C54462	Functional Gait Assessment (FGA) - Gait task support base narrow step count	Count of steps taken by the subject/participant in performing the Gait With Narrow Base of Support task, as part of the Functional Gait Assessment (FGA)	Supplemental	Dynamic Gait Index (DGI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0972-C18690	C18690	Imaging analysis software other text	The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study	Supplemental	Magnetic Resonance Imaging (MRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1005-C09339	C09339	Geriatric Depression Scale (GDS) - afraid something bad indicator	Indicator whether respondent was afraid over the past week that something bad was going to happen to him or her, as part of the Geriatric Depression Scale (short form) (GDSSF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1020-C10871	C10871	Dynamometry hand held muscle test able to break technique indicator	Indicator of whether the examiner overpowered the maximal effort by the participant/subject, thereby producing a measurement of eccentric muscle strength	Supplemental	Hand Held Dynamometry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C18810	C18810	Electrical impedance myography method used other text	The free-text field related to 'Electrical impedance myography method used type' specifying other text. Type of technique/method used for electrical impedance myography (EIM)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C01704	C01704	Pregnancy test specimen type	Type of specimen collected to perform the pregnancy test	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C17785	C17785	Functional MRI data processing software Additional detail text	Additional details regarding the fMRI data processing software used	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1027-C11991	C11991	Timed 25-Foot Walk (T25FW) - assistive device status	Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0978-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.