CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event

Core Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Core Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Core Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08002 Family history relative type biological sample identifier number

Identification (ID) number assigned to family member's biological sample in repository

Supplemental Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08001 Family history relative type biological sample in repository indicator

Indicator of whether the participant's/subject's family member has donated biological sample(s) to a repository

Supplemental Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08000 Family history relative type total membercount

Count of total family members and ancestors for the specified relative type

Supplemental Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11046 Fasciculations abdominal wall status

Status, as presence or absence, of abdominal wall fasciculations

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11045 Fasciculations thoracic paraspinal status

Status, as presence or absence, of thoracic paraspinal fasciculations

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10564 Fasting prior to sample collection indicator

Indicator of whether or not the participant/subject was on fasting prior to blood sample collection

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10564 Fasting prior to sample collection indicator

Indicator of whether or not the participant/subject was on fasting prior to blood sample collection

Supplemental Fasting Information Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09641 Fatigue Severity Scale (FSS) - easy fatigue scale

Scale used to describe the extent to which the patient was easily fatigued in the past week, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09640 Fatigue Severity Scale (FSS) - exercise fatigue scale

Scale used to describe the extent to which exercise brought on the patient's fatigue in the past week, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09643 Fatigue Severity Scale (FSS) - frequent problem scale

Scale used to describe the extent to which fatigue caused frequent problems for the patient in the past week, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09645 Fatigue Severity Scale (FSS) - interfere duty responsibility scale

Scale used to describe the extent to which fatigue interfered with the patient's ability to carry out certain duties and responsibilities, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09642 Fatigue Severity Scale (FSS) - interfere physical function scale

Scale used to describe the extent to which fatigue interfered with the patient's physical functioning in the past week, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09647 Fatigue Severity Scale (FSS) - interfere work family social scale

Scale used to describe the extent to which fatigue interferes with the patient's work, family, or social life, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09639 Fatigue Severity Scale (FSS) - low motivation scale

Scale used to describe the extent to which the patient's motivation was lower in the past week, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09644 Fatigue Severity Scale (FSS) - prevent sustain physical function scale

Scale used to describe the extent to which fatigue prevented the patient's sustained physical functioning in the past week, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09646 Fatigue Severity Scale (FSS) - top 3 disable symptom scale

Scale used to describe the extent to which fatigue is among the patient's three most disabling symptoms, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10477 Fatigue Severity Scale (FSS) - total score

Score calculated by adding all scale values, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10827 Fixed dynamometry date and time

Date (and time, if applicable and known) the fixed dynamometry was performed on the participant/subject

Supplemental Fixed Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10829 Fixed dynamometry muscle test anatomic site

Muscle tested using fixed dynamometry

Supplemental Fixed Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10833 Fixed dynamometry muscle test no result reason

Reason why there was no fixed dynamometry result for the muscle

Supplemental Fixed Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10826 Fixed dynamometry muscle test performed indicator

Indicator of whether the fixed dynamometry muscle testing was done

Supplemental Fixed Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 101 - 125 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.