CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11098 Pulmonary function test date and time

Date the pulmonary function test was performed

Core Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11124 El Escorial revised criteria indicator

Indicator of El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis (ALS) category of diagnostic certainty or confidence

Core Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Core Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10691 Imaging spatially registered template indicator

Indicator as to whether or not imaging is spatially registered to a template for data analysis

Exploratory Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Exploratory Grip Strength Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Exploratory Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10632 Diary day cramps status

Describes whether the participant/subject experienced cramps on a particular day

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10674 Tissue skin biopsy collection anatomic site text

Text representing the specification of the skin biopsy collection site

Exploratory Tissue Based Marker Collection Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11137 Medication withheld duration

Duration, in hours and minutes, medication withheld from the participant/subject

Exploratory Fasting Information Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10584 Imaging phase resolution percentage value

The value in percent of the phase resolution used in imaging acquisition

Exploratory Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

Exploratory Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11022 Polysomnography oxygen saturation below 89 percent time duration

Duration total of O2 saturation (SPO2) below 89% in nocturnal oximetry, as part of nocturnal oximetry

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08254 Imaging visual analysis location performed type

Type of location where visual analysis of the imaging data are performed

Exploratory Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

Exploratory Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10997 Cardiovascular left ventricular systolic pressure measurement

Value, in mmHg, of the left ventricular systolic pressure, as part of myocardial oxygen consumption

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09645 Fatigue Severity Scale (FSS) - interfere duty responsibility scale

Scale used to describe the extent to which fatigue interfered with the patient's ability to carry out certain duties and responsibilities, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09359 Hamilton Depression Rating Scale (HDRS) - anxiety psychic difficulty indicator

Score for the participant/subject's degree of psychic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition

Exploratory Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11007 Vascular partial pressure carbon dioxide four hour period minimum value

Value, as mmHg, of the 4-hour minimum partial pressure carbon dioxide (pCO2), as part of Gas Exchange

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 51 - 75 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.