CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17820 Left upper extremity lower motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of lower motor neuron (LMN) dysfunction in the left upper extremity (LUE) region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17821 Left upper extremity lower motor neuron electromyogram clinical indicator

Indicator of whether an electromyogram (EMG) of the left upper extremity (LUE) region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and renovation in two muscles innovated by different peripheral nerve and different nerve roots

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17822 Left upper extremity upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the left upper extremity (LUE) region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17852 Right lower extremity lower motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of lower motor neuron (LMN) dysfunction in the right lower extremity (RLE) region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17853 Right lower extremity lower motor neuron electromyogram indicator

Indicator of whether an electromyogram (EMG) of the right lower extremity (RLE) region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17854 Right lower extremity upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the right lower extremity (RLE) region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17855 Right upper extremity lower motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of lower motor neuron (LMN) dysfunction in the right upper extremity (RUE) region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17856 Right upper extremity lower motor neuron electromyogram indicator

Indicator of whether an electromyogram (EMG) of the right upper extremity (RUE) region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17857 Right upper extremity upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the right upper extremity (RUE) region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17866 Trunk lower motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of lower motor neuron (LMN) dysfunction in the trunk region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17867 Trunk lower motor neuron electromyogram indicator

Indicator of whether an electromyogram (EMG) of the trunk region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17868 Trunk upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the trunk region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18823 Body part first affected other text

The free-text field related to 'Body part first affected text' specifying other text. Identification of the body part(s) first affected by the disease

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10850 NINDS Human Genetics DNA and Cell Line Repository blood sample indicator

Indicator whether the participant/subject gave a blood sample to the NINDS Human Genetics DNA and Cell Line Repository (a.k.a., Coriell repository)

Supplemental Genetics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17786 Gene mutation type text

The free-text field to specify the mutation found on the specific gene of the participant/subject

Supplemental Genetics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C19515 Gene screened type

Type of genes screened for mutations in patient

Core Genetics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C19516 Blood sample repository name

Name of repository to which the participant/subject gave a blood sample

Supplemental Genetics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C19517 Positive gene type

Type of gene found to be positive after screening

Core Genetics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Supplemental Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01012 Physical exam body system result type

Assessment result of each body system examined

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

Supplemental Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 51 - 75 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.