CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08001 Family history relative type biological sample in repository indicator

Indicator of whether the participant's family member has donated biological sample(s) to a repository

 Supplemental Family History False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11932 Modified Fatigue Impact Scale (MFIS) - psychosocial score

Sum of MFIS Psychosocial items (range: 0-8)

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18813 Imaging lesion found other text

The free-text field related to 'Imaging lesion found type' specifying other text. Type of lesions found in the imaging study

 Supplemental Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21906 Geriatric Depression Scale (GDS) Long Form - Past worry indicator

Indicator whether the subject is worried about the past a lot (long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10838 Imaging voxel size axis 1 measurement

Measurement, in millimeters, of the axis 1 dimension of the voxel within the anatomy of interest

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11120 ALS diagnostic finding anatomic site

Region of the body examined for signs of ALS (Amyotrophic Lateral Sclerosis)

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

 Supplemental Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11114 Pulmonary function sniff nasal inspiratory pressure (SNIP) congestion indicator

Indicator as to whether or not the participant/subject has nasal congestion when Sniff Nasal Inspiratory Pressure (SNIP) was measured

 Supplemental Pulmonary Function False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21915 Geriatric Depression Scale (GDS) Long Form - Decision easy indicator

Indicator whether the subject feels it is easy to make decisions(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12002 Timed 25-Foot Walk (T25FW) - more than two attempts text

Text specification of reason(s) for attempting more than two trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

 Supplemental Timed 25-Foot Walk (T25-FW) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17849 Radio frequency receiver spine array channel count

Count of radio frequency (RF) receiver spine array channels

 Supplemental Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10775 Electromyography not assessed indicator

Indicator whether the electromyography (EMG) was not performed on the specific anatomic site and side

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11060 Gait type

Type of gait examined

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54450 Functional Gait Assessment (FGA) - Gait head turn horizontal task score

Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12030 Schwab and England Activities of Daily Living (ADL) - Patient assessment scale

Assess a person's ability to perform daily activities in terms of speed and independence through a percentage figure

 Supplemental Schwab and England Activities of Daily Living Scale (ADL-Scale) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18693 Imaging contrast agent method other text

The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration

 Supplemental Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10787 MUNE area studied laterality type

Side of the section of the body studied using the MUNE (motor unit number estimation) technique

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

 Supplemental Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental Vital Signs False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54458 Dynamic Gait Index (DGI) - Step around obstacle task score

Score for the subject/participant's performance on the Step Around Obstacles task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09335 Geriatric Depression Scale (GDS) - activity drop indicator

Indicator whether respondent has dropped many of his or her activities over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 226 - 250 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.