CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0986-C10615	C10615	Clinical event or milestone type	Type of clinical event or milestone pertinent to the disease or disorder	Exploratory	Clinical Milestones/Events	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C17805	C17805	Imaging parallel acquisition additional detail text	Text description of additional details, if any, about parallel acquisition method used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1018-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Exploratory	Grip Strength	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10765	C10765	Electromyography fibrillation positive waves presence indicator	Indicator whether there are fibrillation potentials on electromyography (EMG) examination in at least one muscle of the limb studied	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C17816	C17816	Lab test not performed text	Text representing explanation as to why the lab test hasn't been performed on the participant/subject	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1015-C10998	C10998	Cardiovascular end diastolic volume measurement	Value, in mL, of the end-diastolic volume, as part of myocardial oxygen consumption	Exploratory	Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10579	C10579	Imaging post-label delay duration	Duration in milliseconds of the post-labeling delay in imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2745-C09646	C09646	Fatigue Severity Scale (FSS) - top 3 disable symptom scale	Scale used to describe the extent to which fatigue is among the patient's three most disabling symptoms, as part of the Fatigue Severity Scale (FSS)	Exploratory	Fatigue Severity Scale (FSS)	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10568	C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1006-C09360	C09360	Hamilton Depression Rating Scale (HDRS) - anxiety somatic indicator	Score for the participant/subject's grade of symptoms of somatic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)	Exploratory	Hamilton Depression Rating Scale (HDRS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C10967	C10967	Spectroscopy metabolite concentration unit type	Type of the reported metabolite quantitation values in absolute unit (in mM or millimoles/liter) or in institutional unit (that is, not measuring T1 and T2 values of the metabolites, thereby not accounting for the signal loss due to TR and TE values u	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C17854	C17854	Right lower extremity upper motor neuron clinical indicator	Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the right lower extremity (RLE) region	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0972-C10596	C10596	Imaging slice over sampling value	Value of the slice over sampling (as a percentage) used in imaging acquisition	Exploratory	Magnetic Resonance Imaging (MRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1015-C11008	C11008	Vascular partial pressure carbon dioxide four hour period maximum value	Value, as mmHg, of the 4-hour maximum partial pressure carbon dioxide (pCO2), as part of Gas Exchange	Exploratory	Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10588	C10588	Imaging echo train length measurement	Measurement of the echo train length used in imaging acquisition	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11914	C11914	Modified Fatigue Impact Scale (MFIS) - pace physical activity score	Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10591	C10591	Imaging phase encode direction text	Text description of the phase encode direction used in imaging technique acquisition	Exploratory	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1006-C09368	C09368	Hamilton Depression Rating Scale (HDRS) - guilty mind indicator	Score for the presence, qualities, and strength of the participant/subject's guilty feelings, if any, as part of the Hamilton Depression Rating Scale (HDRS)	Exploratory	Hamilton Depression Rating Scale (HDRS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C17862	C17862	Spectroscopy water signal removal filter text	Text to describe the water signal removal filter used if the residual water signal was removed	Exploratory	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0959-C10850	C10850	NINDS Human Genetics DNA and Cell Line Repository blood sample indicator	Indicator whether the participant/subject gave a blood sample to the NINDS Human Genetics DNA and Cell Line Repository (a.k.a., Coriell repository)	Supplemental	Genetics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C10983	C10983	Childbearing potential surgically sterile type	Type of surgical procedure that rendered the participant/subject sterile	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1015-C11016	C11016	Polysomnography nocturnal oximetry end date and time	Date and time of the end of nocturnal oximetry	Exploratory	Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11922	C11922	Modified Fatigue Impact Scale (MFIS) - physical uncomfort score	Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10836	C10836	Imaging functional task type	The functional status of the participant/subject when tasks are of a certain type	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1006-C09376	C09376	Hamilton Depression Rating Scale (HDRS) - total score	Value of the sum of all scores recorded, as part of the Hamilton Depression Rating Scale (HDRS)	Exploratory	Hamilton Depression Rating Scale (HDRS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.