CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11016 Polysomnography nocturnal oximetry end date and time

Date and time of the end of nocturnal oximetry

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10836 Imaging functional task type

The functional status of the participant/subject when tasks are of a certain type

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09376 Hamilton Depression Rating Scale (HDRS) - total score

Value of the sum of all scores recorded, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09339 Geriatric Depression Scale (GDS) - afraid something bad indicator

Indicator whether respondent was afraid over the past week that something bad was going to happen to him or her, as part of the Geriatric Depression Scale (short form) (GDSSF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11100 Pulmonary function test position type

Participant's/subject's position for the pulmonary function assessment

 Supplemental Pulmonary Function False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10577 Imaging signal averages number

Number of signal acquisitions averaged in imaging acquisition

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08255 Imaging visual analysis blinded indicator

Indicator of whether the visual analysis was performed blinded to clinical data

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11111 Pulmonary function sniff nasal inspiratory pressure (SNIP) peak pressure value

Value representing the peak Sniff Nasal Inspiratory Pressure (SNIP), in cm H2O, of three trials

 Supplemental Pulmonary Function False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12000 Timed 25-Foot Walk (T25FW) - trial 2 not completed reason

Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17771 Allergy diagnosis type

Type of allergy the participant/subject experiences

 Supplemental Medical History False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10616 Clinical event or milestone achieved indicator

Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17807 Imaging parallel acquisition details text

Text description of any additional details about the parallel acquisition used, if any, in the MRI sequence being reported

 Supplemental Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Exploratory Grip Strength False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10766 Electromyography neurogenic motor units evidence indicator

Indicator whether there are enlarged and prolonged motor units on electromyography (EMG) examination in at least one muscle of the limb studied

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11054 Reflex type

Type of reflexes examined

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

 Core Physical Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10634 Diary month cramp severity category

Global severity rating of the cramps experienced by the participant/subject in the past 30 days

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Grip Strength Fatigue False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10785 Electrophysiology motor unit number estimation value

Value of the motor unit number estimate (MUNE), derived by dividing compound muscle action potential (CMAP) amplitude by single motor unit potential (SMUP) amplitude

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11120 ALS diagnostic finding anatomic site

Region of the body examined for signs of ALS (Amyotrophic Lateral Sclerosis)

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 226 - 250 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.