CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 708

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0977-C10785	C10785	Electrophysiology motor unit number estimation value	Value of the motor unit number estimate (MUNE), derived by dividing compound muscle action potential (CMAP) amplitude by single motor unit potential (SMUP) amplitude	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10589	C10589	Imaging shot count	The number of shots used in the imaging echo-planner acquisition	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11915	C11915	Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score	Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10592	C10592	Imaging flow compensation indicator	Indicator of whether flow compensation was used in imaging acquisition	Exploratory	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1006-C09369	C09369	Hamilton Depression Rating Scale (HDRS) - suicide indicator	Score for the presence, qualities, and strength of the participant/subject's suicide-relevant thoughts and actions , if any, as part of the Hamilton Depression Rating Scale (HDRS)	Exploratory	Hamilton Depression Rating Scale (HDRS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C17870	C17870	Water reference data acquisition data acquisition time	The acquisition time of the imaging. Water reference data acquisition section	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0959-C17786	C17786	Gene mutation type text	The free-text field to specify the mutation found on the specific gene of the participant/subject	Supplemental	Genetics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C17770	C17770	Allergy diagnosis indicator	Indicator of whether the participant/subject has allergies	Supplemental	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10842	C10842	Imaging analysis software name	Name of the software used for data processing or analysis of the imaging study	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11923	C11923	Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score	Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0960-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Core	Physical Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1005-C09340	C09340	Geriatric Depression Scale (GDS) - feel happy most time indicator	Indicator whether respondent felt happy most of the time over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11931	C11931	Modified Fatigue Impact Scale (MFIS) - cognitive score	Sum of MFIS Cognitive items (range: 0-40)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C11101	C11101	Pulmonary function test mouth apparatus type	Type of mouthpiece used for the pulmonary function test	Supplemental	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11028	C11028	Neuromuscular exam cranial dysarthria result	Result of speech assessment for dysarthria	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C11119	C11119	Body part first affected text	Identification of the body part(s) first affected by the disease	Core	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C11112	C11112	Pulmonary function maximal voluntary ventilation (MVV) result value	Value representing the Maximal Voluntary Ventilation, in Liters per Minute, as the greatest volume of gas that can be breathed per minute by voluntary effort	Supplemental	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2745-C09639	C09639	Fatigue Severity Scale (FSS) - low motivation scale	Scale used to describe the extent to which the patient's motivation was lower in the past week, as part of the Fatigue Severity Scale (FSS)	Exploratory	Fatigue Severity Scale (FSS)	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C10953	C10953	Spectroscopy water signal suppression bandwidth value	Value, in Hz, of bandwidth of water suppression, if any, for the spectroscopy scan being reported	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C17818	C17818	Left lower extremity lower motor neuron clinical indicator	Indicator of whether the examination found clinical evidence of lower motor neuron (LMN) dysfunction in the left lower extremity (LLE)	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0972-C10587	C10587	Imaging echo spacing value	Measurement, in milliseconds, of the echo spacing used in diffusion acquisition	Exploratory	Magnetic Resonance Imaging (MRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.