CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 708

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0976-C02498	C02498	Imaging scanner software version number	Version number of the imaging scanner software	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0960-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Core	Physical Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C10577	C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1015-C11009	C11009	Vascular partial pressure carbon dioxide increase greater than 15 mmHg indicator	Indicator as to whether or not the partial pressure carbon dioxide (pCO2) increased >15mmHg over the 4-hour period monitored, as part of Gas Exchange	Exploratory	Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0957-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's/subject's family member has donated biological sample(s) to a repository	Supplemental	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11915	C11915	Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score	Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1006-C09369	C09369	Hamilton Depression Rating Scale (HDRS) - suicide indicator	Score for the presence, qualities, and strength of the participant/subject's suicide-relevant thoughts and actions , if any, as part of the Hamilton Depression Rating Scale (HDRS)	Exploratory	Hamilton Depression Rating Scale (HDRS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1019-C17783	C17783	Grip strength fatigue percent target not attain indicator	Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11059	C11059	Muscle strength result	Result of the global muscle strength assessment of an arm or leg	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10583	C10583	Imaging base resolution value	Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)	Exploratory	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0972-C10685	C10685	Imaging slice orientation type	The slice orientation used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0986-C10616	C10616	Clinical event or milestone achieved indicator	Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder	Exploratory	Clinical Milestones/Events	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C17807	C17807	Imaging parallel acquisition details text	Text description of any additional details about the parallel acquisition used, if any, in the MRI sequence being reported	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10766	C10766	Electromyography neurogenic motor units evidence indicator	Indicator whether there are enlarged and prolonged motor units on electromyography (EMG) examination in at least one muscle of the limb studied	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0965-C10821	C10821	Food last consumed date and time	Date (and time, if applicable and known) the participant/subject last ate food	Exploratory	Fasting Information	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1020-C10872	C10872	Dynamometry hand held no result reason	Reason why there was no hand held dynamometry result for the muscle	Supplemental	Hand Held Dynamometry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0962-C01535	C01535	Respiratory rate	Rate of the participant/subject's breathing (inhalation and exhalation)	Supplemental	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1016-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10593	C10593	Imaging fat signal suppressed indicator	Indicator as to whether or not fat signal was suppressed in imaging acquisition	Exploratory	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0972-C10934	C10934	Imaging lesion location text	Location of lesion(s) found by the imaging study	Supplemental	Magnetic Resonance Imaging (MRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0986-C10634	C10634	Diary month cramp severity category	Global severity rating of the cramps experienced by the participant/subject in the past 30 days	Exploratory	Clinical Milestones/Events	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10785	C10785	Electrophysiology motor unit number estimation value	Value of the motor unit number estimate (MUNE), derived by dividing compound muscle action potential (CMAP) amplitude by single motor unit potential (SMUP) amplitude	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C10567	C10567	Imaging radio frequency coil type	Type of radio frequency (RF) coil(s) used for the body part scanned	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0972-C02495	C02495	Imaging scanner strength value	Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance Imaging (MRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.