CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 708
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09369 Hamilton Depression Rating Scale (HDRS) - suicide indicator

Score for the presence, qualities, and strength of the participant/subject's suicide-relevant thoughts and actions , if any, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17870 Water reference data acquisition data acquisition time

The acquisition time of the imaging. Water reference data acquisition section

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17786 Gene mutation type text

The free-text field to specify the mutation found on the specific gene of the participant/subject

Supplemental Genetics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17770 Allergy diagnosis indicator

Indicator of whether the participant/subject has allergies

Supplemental Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10842 Imaging analysis software name

Name of the software used for data processing or analysis of the imaging study

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11923 Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score

Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09340 Geriatric Depression Scale (GDS) - feel happy most time indicator

Indicator whether respondent felt happy most of the time over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11931 Modified Fatigue Impact Scale (MFIS) - cognitive score

Sum of MFIS Cognitive items (range: 0-40)

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11101 Pulmonary function test mouth apparatus type

Type of mouthpiece used for the pulmonary function test

Supplemental Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11028 Neuromuscular exam cranial dysarthria result

Result of speech assessment for dysarthria

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11119 Body part first affected text

Identification of the body part(s) first affected by the disease

Core Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11042 Muscle fasciculations indicator

Indicator whether there are fasciculations in the specific muscle or muscle group examined

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12001 Timed 25-Foot Walk (T25FW) - more than two attempts indicator

Indicator of whether more than two attempts were required to obtain two successful trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10617 Clinical event or milestone date and time

Date (and time, if applicable and known) the participant/subject achieved the clinical event or milestone

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Exploratory Grip Strength Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10774 Electromyography normal results indicator

Indicator whether the electromyography (EMG) results are normal for the anatomic site and side studied

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11059 Muscle strength result

Result of the global muscle strength assessment of an arm or leg

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 126 - 150 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.