CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 551 - 575 of 708

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0976-C17798	C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C01701	C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1019-C10851	C10851	Grip strength test indicator	Indicator whether the grip strength testing was done	Exploratory	Grip Strength Fatigue	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0978-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C10687	C10687	Imaging diffusion first b value	Value, in square millimeters per second, of the first b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C01709	C01709	Lab test result status	Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11032	C11032	Neuromuscular exam muscle type	Type of muscle or muscle group examined	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1019-C17783	C17783	Grip strength fatigue percent target not attain indicator	Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C17794	C17794	Imaging diffusion second b value	Value, in square millimeters per second, of the second b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10763	C10763	Electromyography conduction block evidence indicator	Indicator whether there are areas of focal conduction slowing or loss of compound motor action potential amplitude unexplained by nerve compression found by nerve conduction study (NCS)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C17814	C17814	Lab test antibody result	Result of the antibody laboratory test	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11046	C11046	Fasciculations abdominal wall status	Status, as presence or absence, of abdominal wall fasciculations	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1020-C10872	C10872	Dynamometry hand held no result reason	Reason why there was no hand held dynamometry result for the muscle	Supplemental	Hand Held Dynamometry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0986-C10630	C10630	Diary day near falls experienced number	Number of near falls the participant/subject experienced on a particular day	Exploratory	Clinical Milestones/Events	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1016-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10782	C10782	Electrophysiology motor unit number estimation method used type	Type of method or technique used for MUNE (motor unit number estimation)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0964-C10673	C10673	Tissue skin biopsy performed indicator	Indicator as to whether or not a skin biopsy was performed on the participant/subject	Exploratory	Tissue Based Marker Collection	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C11104	C11104	Pulmonary function slow vital capacity (sVC) result value	Value, in Liters, representing the slow Vital Capacity (SVC) maximal amount of air exhaled steadily from full inspiration to maximal expiration in liters. Not time-dependent	Core	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10586	C10586	Imaging bandwidth value	Value, in Hertz per pixel, of bandwidth used in imaging acquisition	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10587	C10587	Imaging echo spacing value	Measurement, in milliseconds, of the echo spacing used in diffusion acquisition	Exploratory	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C17860	C17860	Spectroscopy PRESS asymmetry first echo duration	The duration in milliseconds for the first echo time (TE) in an asymmetrically divided PRESS (double spin-echo) sequence	Exploratory	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C17868	C17868	Trunk upper motor neuron clinical indicator	Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the trunk region	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C11114	C11114	Pulmonary function sniff nasal inspiratory pressure (SNIP) congestion indicator	Indicator as to whether or not the participant/subject has nasal congestion when Sniff Nasal Inspiratory Pressure (SNIP) was measured	Supplemental	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.