CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0974-C10590	C10590	Imaging interpolation indicator	Whether the k-space data were interpolated before applying Fourier transform	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1015-C11020	C11020	Polysomnography oxygen saturation mean value	Value, as a percent, of mean O2 saturation (SPO2) in nocturnal oximetry, as part of nocturnal oximetry	Exploratory	Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C01700	C01700	Specimen accession number	Number with which the specimen taken for the tests being reported was accessioned to the record storage facility	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1024-C11965	C11965	Tardieu Scale movement resistance score	The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject	Core	Tardieu Scale	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1016-C10975	C10975	Manual muscle testing anatomic site	The anatomic site of the muscle assessed during the performance of the manual muscle testing	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C01708	C01708	Lab test performed indicator	Indicator of whether the lab test has been performed on the participant/subject	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11031	C11031	Neuromuscular exam cervical muscle strength measurement	Measurement of strength of the specific muscle or muscle group examined	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1027-C11996	C11996	Timed 25-Foot Walk (T25FW) - trial 1 circumstances affecting performance text	Text description of any circumstances that affected the participant/subject's performance on or completion of the trial being recorded, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0978-C02025	C02025	Medication prior or concomitant RXNorm code	Code for name of the prior/concomitant agent or drug administered	Supplemental	Prior and Concomitant Medications	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C17793	C17793	Imaging diffusion fourth b value	Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1017-C10833	C10833	Fixed dynamometry muscle test no result reason	Reason why there was no fixed dynamometry result for the muscle	Supplemental	Fixed Dynamometry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10762	C10762	Electromyography area weak indicator	Indicator whether there is clinical evidence from electromyography (EMG) of muscle weakness in anatomical region studied	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C10896	C10896	Pregnancy test performed indicator	Indicator as to whether or not a pregnancy test was performed on the participant/subject	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C18811	C18811	Functional MRI data processing software other text	The free-text field related to 'Functional MRI data processing software type'. Name of the fMRI data processing software used	Exploratory	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11045	C11045	Fasciculations thoracic paraspinal status	Status, as presence or absence, of thoracic paraspinal fasciculations	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1027-C17864	C17864	Timed 25-Foot Walk (T25FW) - trial number	Number assigned for identification to the trial currently being assessed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0986-C10629	C10629	Diary day falls experienced number	Number of falls the participant/subject experienced on a particular day	Exploratory	Clinical Milestones/Events	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1018-C10855	C10855	Grip strength maximum measurement	Measurement of the maximum grip strength attained in the trial being recorded	Exploratory	Grip Strength	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1015-C11005	C11005	Vascular partial pressure carbon dioxide mean value	Value, as a percent, of the mean partial pressure carbon dioxide (pCO2), as part of Gas Exchange	Exploratory	Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10585	C10585	Imaging phase partial Fourier indicator	Indicator of whether phase partial Fourier was used	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11911	C11911	Modified Fatigue Impact Scale (MFIS) - unable think clearly score	Scale of having been unable to think clearly as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10586	C10586	Imaging bandwidth value	Value, in Hertz per pixel, of bandwidth used in imaging acquisition	Exploratory	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1006-C09365	C09365	Hamilton Depression Rating Scale (HDRS) - weight loss patient indicator	Score for the amount of weight loss reported by the participant/subject, as part of the Hamilton Depression Rating Scale (HDRS)	Exploratory	Hamilton Depression Rating Scale (HDRS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C17859	C17859	Imaging voxel size axis 3 measurement	Measurement, in millimeters, of the axis 3 dimension of the voxel within the anatomy of interest	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C17867	C17867	Trunk lower motor neuron electromyogram indicator	Indicator of whether an electromyogram (EMG) of the trunk region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.