CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 526 - 550 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09341 Geriatric Depression Scale (GDS) - feel helpless indicator

Indicator whether respondent often felt helpless over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17852 Right lower extremity lower motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of lower motor neuron (LMN) dysfunction in the right lower extremity (RLE) region

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11932 Modified Fatigue Impact Scale (MFIS) - psychosocial score

Sum of MFIS Psychosocial items (range: 0-8)

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11104 Pulmonary function slow vital capacity (sVC) result value

Value, in Liters, representing the slow Vital Capacity (SVC) maximal amount of air exhaled steadily from full inspiration to maximal expiration in liters. Not time-dependent

 Core Pulmonary Function False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10838 Imaging voxel size axis 1 measurement

Measurement, in millimeters, of the axis 1 dimension of the voxel within the anatomy of interest

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17868 Trunk upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the trunk region

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11114 Pulmonary function sniff nasal inspiratory pressure (SNIP) congestion indicator

Indicator as to whether or not the participant/subject has nasal congestion when Sniff Nasal Inspiratory Pressure (SNIP) was measured

 Supplemental Pulmonary Function False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09640 Fatigue Severity Scale (FSS) - exercise fatigue scale

Scale used to describe the extent to which exercise brought on the patient's fatigue in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11000 Cardiovascular contractility measurement

Value, in mmHg/mL, of cardiac contractility, as part of myocardial oxygen consumption

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10581 Imaging measurement pair count

Count of the number of control and tag measurement pairs in the imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10477 Fatigue Severity Scale (FSS) - total score

Score calculated by adding all scale values, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09362 Hamilton Depression Rating Scale (HDRS) - general somatic symptoms indicator

Score for the intensity of the participant/subject's general somatic symptoms, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10969 Spectroscopy spectral fit software used type

Type of the spectral fit software used

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11019 Neuromuscular exam segment type

Type of neuromuscular segment examined

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12030 Schwab and England Activities of Daily Living (ADL) - Patient assessment scale

Assess a person's ability to perform daily activities in terms of speed and independence through a percentage figure

 Supplemental Schwab and England Activities of Daily Living Scale (ADL-Scale) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

 Exploratory Grip Strength Fatigue False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11036 Hoffman reflex result

Result of the examination of the Hoffman reflex

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09335 Geriatric Depression Scale (GDS) - activity drop indicator

Indicator whether respondent has dropped many of his or her activities over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17782 Electromyography comment text

Text field for comments on electromyography (EMG) on the specific anatomic site and side

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11017 Polysomnography nocturnal oximetry recording device duration

Duration of nocturnal oximetry recording

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17815 Lab test location

Location the lab tests were completed

 Supplemental Laboratory Tests False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11047 Reflex superficial abdominal status

Status, as presence or absence, of superficial abdominal reflexes

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17790 Dynamometry hand held time

Time the hand held dynamometry was performed

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10674 Tissue skin biopsy collection anatomic site text

Text representing the specification of the skin biopsy collection site

 Exploratory Tissue Based Marker Collection False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 526 - 550 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.