CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Exploratory Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01553 Blood pressure measurement position type

Indicator of the participant's position during the blood pressure measurement

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10564 Lab blood specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of blood lab specimen

Supplemental Fasting Information Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10564 Lab blood specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of blood lab specimen

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11109 Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator

Indicator of whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis

Supplemental Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10172 Forced vital capacity result value

Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

Core Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10173 Forced expiratory volume second result value

Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)

Supplemental Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11106 Pulmonary function maximal expiratory pressure (MEP) result value

Value in centimeters of water (cm H2O) of Maximal Expiratory Pressure (MEP) a measure of the strength of respiratory muscles

Supplemental Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11105 Pulmonary function maximal inspiratory pressure (MIP) result value

Value in centimeters of water (cm H2O) of Maximal Inspiratory Pressure (MIP) a measure of the strength of respiratory muscles

Exploratory Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11098 Pulmonary function test date and time

Date (and time, if applicable and known) the pulmonary function test was performed

Core Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11131 Body mass index value

Value of the participant's body mass index, calculated from height and weight

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Core Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08001 Family history relative type biological sample in repository indicator

Indicator of whether the participant's family member has donated biological sample(s) to a repository

Supplemental Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C19516 Blood sample repository name

Name of repository to which the participant gave a blood sample

Supplemental Genetics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 26 - 50 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.