CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 1271
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

 Core General Core False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

 Core General Core False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.

 Supplemental Prior and Concomitant Medications False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54467 Functional Gait Assessment (FGA) - Total score

Total score for the subject/participant's performance on all tasks, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54468 Dynamic Gait Index (DGI) - Total score

Total score for the subject/participant's performance on all tasks, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54465 Functional Gait Assessment (FGA) - Gait task stair score

Score for the subject/participant's performance walking up stairs for the Steps task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54466 Dynamic Gait Index (DGI) - Gait task stair score

Score for the subject/participant's performance walking up stairs for the Steps task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54463 Functional Gait Assessment (FGA) - Gait task ambulate backward score

Score for the subject/participant's performance on the Ambulating Backwards task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54464 Functional Gait Assessment (FGA) - Gait task ambulate backward duration

Time take for the subject/participant to complete the Ambulating Backwards task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54460 Functional Gait Assessment (FGA) - Gait task eye closed score

Score for the subject/particpant's performance on the Gait With Eyes Closed task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54461 Functional Gait Assessment (FGA) - Gait task eye closed duration

Time taken by the subject/particpant to complete the Gait With Eyes Closed task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54459 Functional Gait Assessment (FGA) - Gait task support base narrow score

Score for the subject/participant's performance on the Gait With Narrow Base of Support task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54462 Functional Gait Assessment (FGA) - Gait task support base narrow step count

Count of steps taken by the subject/participant in performing the Gait With Narrow Base of Support task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54456 Functional Gait Assessment (FGA) - Step over obstacle task score

Score for the subject/participant's performance on the Step Over Obstacles task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54457 Dynamic Gait Index (DGI) - Step over obstacle task score

Score for the subject/participant's performance on the Step Over Obstacles task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54458 Dynamic Gait Index (DGI) - Step around obstacle task score

Score for the subject/participant's performance on the Step Around Obstacles task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54454 Functional Gait Assessment (FGA) - Gait turn pivot task score

Score for the subject/participant's performance on the Gait And Pivot Turn task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54455 Dynamic Gait Index (DGI) - Gait turn pivot task score

Score for the subject/participant's performance on the Gait And Pivot Turn task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54452 Functional Gait Assessment (FGA) - Gait head turn vertical task score

Score for the subject/participant's performance on the Gait With Vertical Head Turns task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54453 Dynamic Gait Index (DGI) - Gait head turn vertical task score

Score for the subject/participant's performance on the Gait With Vertical Head Turns task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54451 Dynamic Gait Index (DGI) - Gait head turn horizontal task score

Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54450 Functional Gait Assessment (FGA) - Gait head turn horizontal task score

Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54445 Functional Gait Assessment (FGA) - Gait level surface task score

Score for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54446 Dynamic Gait Index (DGI) - Gait level surface task score

Score for the level-surface gait task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54447 Functional Gait Assessment (FGA) - Gait level surface task duration

Time taken by the subject/participant to ambulate 20 feet for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 1 - 25 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.