CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10766 Electromyography neurogenic motor units evidence indicator

Indicator whether there are enlarged and prolonged motor units on electromyography (EMG) examination in at least one muscle of the limb studied

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11054 Reflex type

Type of reflexes examined

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10634 Diary month cramp severity category

Global severity rating of the cramps experienced by the participant/subject in the past 30 days

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09333 Geriatric Depression Scale (GDS) - situation hopeless indicator

Indicator whether over the past week respondent felt her or his situation is hopeless, as part of the Geriatric Depression Scale (short form) (GDSSF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10794 Electrical impedance myography method used type

Type of technique/method used for electrical impedance myography (EIM)

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10891 Basal metabolic rate

Basal Metabolic Rate (BMR) is the Resting Energy Expenditure (REE) measured upon awakening after an overnight fast

 Exploratory Resting Energy Expenditure False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10871 Dynamometry hand held muscle test able to break technique indicator

Indicator of whether the examiner overpowered the maximal effort by the participant/subject, thereby producing a measurement of eccentric muscle strength

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10850 NINDS Human Genetics DNA and Cell Line Repository blood sample indicator

Indicator whether the participant/subject gave a blood sample to the NINDS Human Genetics DNA and Cell Line Repository (a.k.a., Coriell repository)

 Supplemental Genetics False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11931 Modified Fatigue Impact Scale (MFIS) - cognitive score

Sum of MFIS Cognitive items (range: 0-40)

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10983 Childbearing potential surgically sterile type

Type of surgical procedure that rendered the participant/subject sterile

 Supplemental Medical History False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11112 Pulmonary function maximal voluntary ventilation (MVV) result value

Value representing the Maximal Voluntary Ventilation, in Liters per Minute, as the greatest volume of gas that can be breathed per minute by voluntary effort

 Supplemental Pulmonary Function False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09639 Fatigue Severity Scale (FSS) - low motivation scale

Scale used to describe the extent to which the patient's motivation was lower in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11027 Neuromuscular exam cranial tongue movement result

Result of tongue movement examination

 Supplemental Neuromuscular Examination False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10999 Cardiovascular left ventricular wall thickness measurement

Value, in cm, of the left ventricular wall thickness, as part of myocardial oxygen consumption

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10580 Imaging labeling plane center slice distance value

Value in millimeters (mm) of the distance between the labeling slab and the center slice of the imaging for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09647 Fatigue Severity Scale (FSS) - interfere work family social scale

Scale used to describe the extent to which fatigue interferes with the patient's work, family, or social life, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09361 Hamilton Depression Rating Scale (HDRS) - somatic symptoms indicator

Score for the intensity of the participant/subject's somatic gastrointestinal symptoms, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10968 Spectroscopy CSF partial volume indicator

Indicator of whether partial volume occupied by cerebrospinal fluid (CSF) in voxels of interest is accounted for as a part of metabolite quantitation process

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17817 Left lower extremity lower motor neuron electromyogram indicator

Indicator of whether an electromyogram (EMG) of the left lower extremity (LLE) region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11009 Vascular partial pressure carbon dioxide increase greater than 15 mmHg indicator

Indicator as to whether or not the partial pressure carbon dioxide (pCO2) increased >15mmHg over the 4-hour period monitored, as part of Gas Exchange

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11915 Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score

Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09369 Hamilton Depression Rating Scale (HDRS) - suicide indicator

Score for the presence, qualities, and strength of the participant/subject's suicide-relevant thoughts and actions , if any, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17870 Water reference data acquisition data acquisition time

The acquisition time of the imaging. Water reference data acquisition section

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17854 Right lower extremity upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the right lower extremity (RLE) region

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 226 - 250 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.