CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 708

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0973-C17811	C17811	Imaging phase partial Fourier value	Value of the phase partial Fourier ratio, if used in imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1027-C11992	C11992	Timed 25-Foot Walk (T25FW) - unilateral assistance device type	Range, in sides of the body, for which the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1017-C10827	C10827	Fixed dynamometry date and time	Date (and time, if applicable and known) the fixed dynamometry was performed on the participant/subject	Supplemental	Fixed Dynamometry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11042	C11042	Muscle fasciculations indicator	Indicator whether there are fasciculations in the specific muscle or muscle group examined	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1027-C12001	C12001	Timed 25-Foot Walk (T25FW) - more than two attempts indicator	Indicator of whether more than two attempts were required to obtain two successful trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0986-C10617	C10617	Clinical event or milestone date and time	Date (and time, if applicable and known) the participant/subject achieved the clinical event or milestone	Exploratory	Clinical Milestones/Events	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C17811	C17811	Imaging phase partial Fourier value	Value of the phase partial Fourier ratio, if used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1018-C10851	C10851	Grip strength test indicator	Indicator whether the grip strength testing was done	Exploratory	Grip Strength	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10774	C10774	Electromyography normal results indicator	Indicator whether the electromyography (EMG) results are normal for the anatomic site and side studied	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11059	C11059	Muscle strength result	Result of the global muscle strength assessment of an arm or leg	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0986-C17774	C17774	Diary cramps date	Date in the diary where the participant/subject was evaluated for the presence of cramps as part of the Clinical Milestones and Events questionnaire	Supplemental	Clinical Milestones/Events	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1019-C10851	C10851	Grip strength test indicator	Indicator whether the grip strength testing was done	Exploratory	Grip Strength Fatigue	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0965-C10821	C10821	Food last consumed date and time	Date (and time, if applicable and known) the participant/subject last ate food	Exploratory	Fasting Information	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1005-C09334	C09334	Geriatric Depression Scale (GDS) - people better off indicator	Indicator whether over the past week respondent thought most other people are better off than her or him, as part of the Geriatric Depression Scale (short form) (GDSSF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1019-C17783	C17783	Grip strength fatigue percent target not attain indicator	Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C17781	C17781	Electrical impedance myography comment text	Text field for comments on the electrical impedance myography (EIM) performed	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1005-C09341	C09341	Geriatric Depression Scale (GDS) - feel helpless indicator	Indicator whether respondent often felt helpless over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11932	C11932	Modified Fatigue Impact Scale (MFIS) - psychosocial score	Sum of MFIS Psychosocial items (range: 0-8)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C11104	C11104	Pulmonary function slow vital capacity (sVC) result value	Value, in Liters, representing the slow Vital Capacity (SVC) maximal amount of air exhaled steadily from full inspiration to maximal expiration in liters. Not time-dependent	Core	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C10838	C10838	Imaging voxel size axis 1 measurement	Measurement, in millimeters, of the axis 1 dimension of the voxel within the anatomy of interest	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C11120	C11120	ALS diagnostic finding anatomic site	Region of the body examined for signs of ALS (Amyotrophic Lateral Sclerosis)	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C11114	C11114	Pulmonary function sniff nasal inspiratory pressure (SNIP) congestion indicator	Indicator as to whether or not the participant/subject has nasal congestion when Sniff Nasal Inspiratory Pressure (SNIP) was measured	Supplemental	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2745-C09640	C09640	Fatigue Severity Scale (FSS) - exercise fatigue scale	Scale used to describe the extent to which exercise brought on the patient's fatigue in the past week, as part of the Fatigue Severity Scale (FSS)	Exploratory	Fatigue Severity Scale (FSS)	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C17819	C17819	Left lower extremity upper motor neuron clinical indicator	Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the left lower extremity (LLE) region	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0955-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Core	Social Status	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.