CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10581 Imaging measurement pair count

Count of the number of control and tag measurement pairs in the imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10477 Fatigue Severity Scale (FSS) - total score

Score calculated by adding all scale values, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00321 Medical history for body system indicator

Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system

Core Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09362 Hamilton Depression Rating Scale (HDRS) - general somatic symptoms indicator

Score for the intensity of the participant/subject's general somatic symptoms, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10969 Spectroscopy spectral fit software used type

Type of the spectral fit software used

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11010 Vascular partial pressure carbon dioxide mean transcutaneous value

Value, as a percent, of the mean transcutaneous partial pressure carbon dioxide (pCO2), as part of Gas Exchange

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11916 Modified Fatigue Impact Scale (MFIS) - less motivate social activity score

Scale for having been less motivated to participate in social activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09370 Hamilton Depression Rating Scale (HDRS) - early night insomnia indicator

Score for the participant/subject's difficulty, if any, with early-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17871 Water reference data acquisition signal averages number

Number of signal acquisitions averaged in imaging acquisition. Water reference data acquisition section

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10840 Functional MRI data processing software type

Name of the fMRI data processing software used

Exploratory Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10843 Imaging analysis software version number

The version number of the software used for quantitative analysis of the imaging study

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11924 Modified Fatigue Impact Scale (MFIS) - difficult organize thought home work score

Scale for having had difficulty organizing thoughts when doing things at home or at work as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08002 Family history relative type biological sample identifier number

Identification (ID) number assigned to family member's biological sample in repository

Supplemental Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09341 Geriatric Depression Scale (GDS) - feel helpless indicator

Indicator whether respondent often felt helpless over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11932 Modified Fatigue Impact Scale (MFIS) - psychosocial score

Sum of MFIS Psychosocial items (range: 0-8)

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11121 Bulbar upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the bulbar region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11104 Pulmonary function slow vital capacity (sVC) result value

Value, in Liters, representing the slow Vital Capacity (SVC) maximal amount of air exhaled steadily from full inspiration to maximal expiration in liters. Not time-dependent

Core Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Core Demographics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10838 Imaging voxel size axis 1 measurement

Measurement, in millimeters, of the axis 1 dimension of the voxel within the anatomy of interest

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17820 Left upper extremity lower motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of lower motor neuron (LMN) dysfunction in the left upper extremity (LUE) region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11114 Pulmonary function sniff nasal inspiratory pressure (SNIP) congestion indicator

Indicator as to whether or not the participant/subject has nasal congestion when Sniff Nasal Inspiratory Pressure (SNIP) was measured

Supplemental Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09640 Fatigue Severity Scale (FSS) - exercise fatigue scale

Scale used to describe the extent to which exercise brought on the patient's fatigue in the past week, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11115 Religion type

Religion the participant/subject practices or with which he/she identifies

Supplemental Social Status Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10671 Muscle biopsy limb affected clinically indicator

Indicator as to whether or not the limb from which the biopsy was taken was affected clinically

Exploratory Tissue Based Marker Collection Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12002 Timed 25-Foot Walk (T25FW) - more than two attempts text

Text specification of reason(s) for attempting more than two trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 101 - 125 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.