CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11044 Reflex normal indicator

Indicator whether the reflexes are normal in the anatomic site examined

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09332 Geriatric Depression Scale (GDS) - full energy indicator

Indicator whether over the past week respondent felt full of energy, as part of the Geriatric Depression Scale (short form) (GDSSF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10934 Imaging lesion location text

Location of lesion(s) found by the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10793 Electrical impedance myography muscle weak indicator

Indicator whether there is clinical evidence of muscle weakness using electrical impedance myography (EIM)

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11913 Modified Fatigue Impact Scale (MFIS) - forgetful score

Scale for having been forgetful as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10671 Muscle biopsy limb affected clinically indicator

Indicator as to whether or not the limb from which the biopsy was taken was affected clinically

Exploratory Tissue Based Marker Collection Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11061 Gait assessment result

Result of the gait assessment

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10839 Imaging volume count

The number of volume data sets acquired during the imaging scan

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10869 Dynamometry hand held muscle test result

The results of the trial performed by the participant/subject on the hand held dynamometer

Supplemental Hand Held Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10823 Alcohol last consumed date and time

Date (and time, if applicable and known) the participant/subject last drank alcohol

Exploratory Fasting Information Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11990 Timed 25-Foot Walk (T25FW) - ankle foot orthosis status

Indicator whether the participant/subject wore an ankle-foot orthosis (AFO) during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11929 Modified Fatigue Impact Scale (MFIS) - rest more often longer score

Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10838 Imaging voxel size axis 1 measurement

Measurement, in millimeters, of the axis 1 dimension of the voxel within the anatomy of interest

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11111 Pulmonary function sniff nasal inspiratory pressure (SNIP) peak pressure value

Value representing the peak Sniff Nasal Inspiratory Pressure (SNIP), in cm H2O, of three trials

Supplemental Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17819 Left lower extremity upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the left lower extremity (LLE) region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Core Social Status Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10998 Cardiovascular end diastolic volume measurement

Value, in mL, of the end-diastolic volume, as part of myocardial oxygen consumption

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17856 Right upper extremity lower motor neuron electromyogram indicator

Indicator of whether an electromyogram (EMG) of the right upper extremity (RUE) region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09360 Hamilton Depression Rating Scale (HDRS) - anxiety somatic indicator

Score for the participant/subject's grade of symptoms of somatic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10581 Imaging measurement pair count

Count of the number of control and tag measurement pairs in the imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10969 Spectroscopy spectral fit software used type

Type of the spectral fit software used

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 51 - 75 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.