CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 708

« first
‹ previous
…
7
8
9
10
11
12
13
14
15
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1027-C11993	C11993	Timed 25-Foot Walk (T25FW) - bilateral assistance device type	Type of assistive device used by the participant/subject during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1017-C10829	C10829	Fixed dynamometry muscle test anatomic site	Muscle tested using fixed dynamometry	Supplemental	Fixed Dynamometry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1027-C12002	C12002	Timed 25-Foot Walk (T25FW) - more than two attempts text	Text specification of reason(s) for attempting more than two trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C17849	C17849	Radio frequency receiver spine array channel count	Count of radio frequency (RF) receiver spine array channels	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1018-C10852	C10852	Grip strength test performed date and time	Date (and time, if applicable and known) that grip strength testing was done	Exploratory	Grip Strength	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10775	C10775	Electromyography not assessed indicator	Indicator whether the electromyography (EMG) was not performed on the specific anatomic site and side	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C11125	C11125	Awaji criteria indicator	Awaji criteria for diagnosis of amyotrophic lateral sclerosis (ALS) category of diagnostic certainty or confidence	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0991-C12030	C12030	Schwab and England Activities of Daily Living (ADL) - Patient assessment scale	Assess a person's ability to perform daily activities in terms of speed and independence through a percentage figure	Supplemental	Schwab and England Activities of Daily Living Scale (ADL-Scale)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1019-C10852	C10852	Grip strength test performed date and time	Date (and time, if applicable and known) that grip strength testing was done	Exploratory	Grip Strength Fatigue	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C17853	C17853	Right lower extremity lower motor neuron electromyogram indicator	Indicator of whether an electromyogram (EMG) of the right lower extremity (RLE) region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0964-C17830	C17830	Muscle biobsy limb affected clinical text	Text representing details on how the limb, from which the biopsy was taken, was clinically affected	Supplemental	Tissue Based Marker Collection	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11925	C11925	Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score	Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1005-C09342	C09342	Geriatric Depression Scale (GDS) - prefer home indicator	Indicator whether respondent preferred to stay at home over the past week rather than going out and doing things, as part of the Geriatric Depression Scale (short form) (GDSSF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0966-C10890	C10890	Resting energy expenditure measurement	Resting Energy Expenditure (REE) is a measure of the calories (energy) burned to maintain bodily functions in the alert, resting (physically inactive) state	Exploratory	Resting Energy Expenditure	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11933	C11933	Modified Fatigue Impact Scale (MFIS) - total score	Total MFIS score (range: 0-84)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C17832	C17832	Pulmonary function maximum inspiratory pressure (MIP) type	Type of Maximum Inspiratory Pressure (MIP)	Supplemental	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C10569	C10569	Imaging perfusion method type	Type of method used for acquiring perfusion magnetic resonance imaging (PMRI) data	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2745-C09641	C09641	Fatigue Severity Scale (FSS) - easy fatigue scale	Scale used to describe the extent to which the patient was easily fatigued in the past week, as part of the Fatigue Severity Scale (FSS)	Exploratory	Fatigue Severity Scale (FSS)	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11039	C11039	Muscle atrophy indicator	Indicator whether the examination reveals atrophy in the specific muscle or muscle group	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1015-C11003	C11003	Cardiovascular myocardial oxygen consumption value	Value, in mL/100 g/min, calculated for myocardial oxygen consumption (Mo2)	Exploratory	Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C11909	C11909	Modified Fatigue Impact Scale (MFIS) - less alert score	Scale for being less alert as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1006-C09363	C09363	Hamilton Depression Rating Scale (HDRS) - genital symptoms indicator	Score for the intensity of the participant/subject's genital symptoms such as loss of libido or menstrual disturbances, as part of the Hamilton Depression Rating Scale (HDRS)	Exploratory	Hamilton Depression Rating Scale (HDRS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C17849	C17849	Radio frequency receiver spine array channel count	Count of radio frequency (RF) receiver spine array channels	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C17816	C17816	Lab test not performed text	Text representing explanation as to why the lab test hasn't been performed on the participant/subject	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11051	C11051	Plantar reflex result	Result of the examination of the plantar reflex	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

Displaying 251 - 275 of 708

« first
‹ previous
…
7
8
9
10
11
12
13
14
15
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.