CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18818 Childbearing potential surgically sterile other text

The free-text field related to 'Childbearing potential surgically sterile type' specifying other text. Type of surgical procedure that rendered the participant/subject sterile

 Supplemental Medical History False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11927 Modified Fatigue Impact Scale (MFIS) - trouble concentrate score

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10843 Imaging analysis software version number

The version number of the software used for quantitative analysis of the imaging study

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath

 Core Pulmonary Function False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18815 Spectroscopy spectral fit software used other text

The free-text field related to 'Spectroscopy spectral fit software used type' specifying other text. Type of the spectral fit software used

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10814 Parents biologically related indicator

The indicator whether the subject's/participant's parents are biologically related

 Supplemental Family History False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17825 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less alert scale

Scale for being less alert as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11107 Pulmonary function peak expiratory flow result value

Value representing the Peak Expiratory Flow (PEF) as a person's maximum speed of expiration

 Supplemental Pulmonary Function False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11123 Bulbar lower motor neuron electromyogram indicator

Indicator of whether an electromyogram (EMG) of the bulbar region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09643 Fatigue Severity Scale (FSS) - frequent problem scale

Scale used to describe the extent to which fatigue caused frequent problems for the patient in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17822 Left upper extremity upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the left upper extremity (LUE) region

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11005 Vascular partial pressure carbon dioxide mean value

Value, as a percent, of the mean partial pressure carbon dioxide (pCO2), as part of Gas Exchange

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11911 Modified Fatigue Impact Scale (MFIS) - unable think clearly score

Scale of having been unable to think clearly as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09365 Hamilton Depression Rating Scale (HDRS) - weight loss patient indicator

Score for the amount of weight loss reported by the participant/subject, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17859 Imaging voxel size axis 3 measurement

Measurement, in millimeters, of the axis 3 dimension of the voxel within the anatomy of interest

 Supplemental Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17867 Trunk lower motor neuron electromyogram indicator

Indicator of whether an electromyogram (EMG) of the trunk region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10843 Imaging analysis software version number

The version number of the software used for quantitative analysis of the imaging study

 Supplemental Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10980 Childbearing potential indicator

Indicator of whether the participant is of childbearing potential

 Supplemental Medical History False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10825 Medication withheld prior sample collection name

Name of medication withheld prior to sample collection

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09338 Geriatric Depression Scale (GDS) - good spirit indicator

Indicator whether respondent was in good spirits most of the time over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10865 Dynamometry hand held muscle test performed date

Date (and time, if applicable and known) the hand held dynamometry was performed on the participant/subject

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18807 Electromyography area studied anatomic other text

The free-text field related to 'Electromyography area studied anatomic site' specifying other text. Anatomic site where electrical activity of voluntary (skeletal) muscles are measured at rest and during voluntary action using electromyography (EMG)

 Supplemental Electrophysiology False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11021 Polysomnography nocturnal oximetry desaturation total count

Count total of desaturations in nocturnal oximetry, as part of nocturnal oximetry

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 251 - 275 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.