CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10787 MUNE area studied laterality type

Side of the section of the body studied using the MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C13905 Imaging contrast agent method type

Indicates imaging contrast agent method of administration

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C13905 Imaging contrast agent method type

Indicates imaging contrast agent method of administration

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17541 Tardieu Scale assistive device text

Text identifying an assistive device used by the participant/subject for an immovable joint in a limb

Supplemental Tardieu Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C15572 Imaging diffusion direction count

Count of diffusion directions in the associated diffusion imaging study

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10633 Diary day cramps experienced number

Number of cramps the participant/subject experienced on a particular day

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10784 Motor unit number estimation single motor unit potential measurement

Measurement in microvolts (?V) of the single motor unit potential (SMUP) amplitude, estimated using the designated MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17830 Muscle biobsy limb affected clinical text

Text representing details on how the limb, from which the biopsy was taken, was clinically affected

Supplemental Tissue Based Marker Collection Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09332 Geriatric Depression Scale (GDS) - full energy indicator

Indicator whether over the past week respondent felt full of energy, as part of the Geriatric Depression Scale (short form) (GDSSF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10793 Electrical impedance myography muscle weak indicator

Indicator whether there is clinical evidence of muscle weakness using electrical impedance myography (EIM)

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10890 Resting energy expenditure measurement

Resting Energy Expenditure (REE) is a measure of the calories (energy) burned to maintain bodily functions in the alert, resting (physically inactive) state

Exploratory Resting Energy Expenditure Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10869 Dynamometry hand held muscle test result

The results of the trial performed by the participant/subject on the hand held dynamometer

Supplemental Hand Held Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11990 Timed 25-Foot Walk (T25FW) - ankle foot orthosis status

Indicator whether the participant/subject wore an ankle-foot orthosis (AFO) during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11039 Muscle atrophy indicator

Indicator whether the examination reveals atrophy in the specific muscle or muscle group

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11999 Timed 25-Foot Walk (T25FW) - trial 2 circumstances affecting performance text

Record in text any circumstances that affected the patient's performance for a completed Trial 2, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17805 Imaging parallel acquisition additional detail text

Text description of additional details, if any, about parallel acquisition method used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10765 Electromyography fibrillation positive waves presence indicator

Indicator whether there are fibrillation potentials on electromyography (EMG) examination in at least one muscle of the limb studied

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17816 Lab test not performed text

Text representing explanation as to why the lab test hasn't been performed on the participant/subject

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11051 Plantar reflex result

Result of the examination of the plantar reflex

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10579 Imaging post-label delay duration

Duration in milliseconds of the post-labeling delay in imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09646 Fatigue Severity Scale (FSS) - top 3 disable symptom scale

Scale used to describe the extent to which fatigue is among the patient's three most disabling symptoms, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09360 Hamilton Depression Rating Scale (HDRS) - anxiety somatic indicator

Score for the participant/subject's grade of symptoms of somatic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10967 Spectroscopy metabolite concentration unit type

Type of the reported metabolite quantitation values in absolute unit (in mM or millimoles/liter) or in institutional unit (that is, not measuring T1 and T2 values of the metabolites, thereby not accounting for the signal loss due to TR and TE values u

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.