CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10824 Medication withheld prior to sample collection indicator

Indicator as to whether or not medications were withheld from the participant/subject prior to sample collection

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10825 Medication withheld prior sample collection name

Name of medication withheld prior to sample collection

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09645 Fatigue Severity Scale (FSS) - interfere duty responsibility scale

Scale used to describe the extent to which fatigue interfered with the patient's ability to carry out certain duties and responsibilities, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09646 Fatigue Severity Scale (FSS) - top 3 disable symptom scale

Scale used to describe the extent to which fatigue is among the patient's three most disabling symptoms, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09647 Fatigue Severity Scale (FSS) - interfere work family social scale

Scale used to describe the extent to which fatigue interferes with the patient's work, family, or social life, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09639 Fatigue Severity Scale (FSS) - low motivation scale

Scale used to describe the extent to which the patient's motivation was lower in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10477 Fatigue Severity Scale (FSS) - total score

Score calculated by adding all scale values, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09640 Fatigue Severity Scale (FSS) - exercise fatigue scale

Scale used to describe the extent to which exercise brought on the patient's fatigue in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09641 Fatigue Severity Scale (FSS) - easy fatigue scale

Scale used to describe the extent to which the patient was easily fatigued in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09642 Fatigue Severity Scale (FSS) - interfere physical function scale

Scale used to describe the extent to which fatigue interfered with the patient's physical functioning in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09643 Fatigue Severity Scale (FSS) - frequent problem scale

Scale used to describe the extent to which fatigue caused frequent problems for the patient in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09644 Fatigue Severity Scale (FSS) - prevent sustain physical function scale

Scale used to describe the extent to which fatigue prevented the patient's sustained physical functioning in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Fixed Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Fixed Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10826 Fixed dynamometry muscle test performed indicator

Indicator of whether the fixed dynamometry muscle testing was done

 Supplemental Fixed Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10827 Fixed dynamometry date and time

Date (and time, if applicable and known) the fixed dynamometry was performed on the participant/subject

 Supplemental Fixed Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10829 Fixed dynamometry muscle test anatomic site

Muscle tested using fixed dynamometry

 Supplemental Fixed Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10831 Fixed dynamometry muscle test result

Results from the trial performed by the participant/subject on the fixed dynamometer

 Supplemental Fixed Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10833 Fixed dynamometry muscle test no result reason

Reason why there was no fixed dynamometry result for the muscle

 Supplemental Fixed Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17784 Fixed dynamometry time

Time the fixed dynamometry was performed on the participant/subject

 Supplemental Fixed Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10567 Imaging radio frequency coil type

Type of radio frequency (RF) coil(s) used for the body part scanned

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

 Exploratory Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10835 Imaging resting eye state status

The position of eyes at resting state during the imaging study

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 201 - 225 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.