CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 708

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C10763	Electromyography conduction block evidence indicator	Indicator whether there are areas of focal conduction slowing or loss of compound motor action potential amplitude unexplained by nerve compression found by nerve conduction study (NCS)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10782	Electrophysiology motor unit number estimation method used type	Type of method or technique used for MUNE (motor unit number estimation)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10790	Transcranial magnetic stimulation muscle weak indicator	Indicator whether there is clinical evidence of muscle weakness from the transcranial magnetic stimulation (TMS)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C18808	Electrophysiology motor unit number estimation method used other text	The free-text field related to 'Electrophysiology motor unit number estimation method used type' specifying other text. Type of method or technique used for MUNE (motor unit number estimation)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10764	Electromyography fasciculations presence indicator	Indicator whether there are fasciculations present at rest in at least one muscle of the limb studied with electromyography (EMG)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10783	Electrophysiology motor unit number estimation compound muscle action potential measurement	Measurement in millivolts (mV) of the compound muscle action potential (CMAP) amplitude for the muscle on which MUNE (motor unit number estimation) is performed	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10791	Electrical impedance myography muscle studied name	Name of the muscle studied using electrical impedance myography (EIM)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C18809	Electrophysiology motor unit number estimation nerve other text	The free-text field related to 'Electrophysiology motor unit number estimation nerve type' specifying other text. Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10765	Electromyography fibrillation positive waves presence indicator	Indicator whether there are fibrillation potentials on electromyography (EMG) examination in at least one muscle of the limb studied	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10784	Motor unit number estimation single motor unit potential measurement	Measurement in microvolts (?V) of the single motor unit potential (SMUP) amplitude, estimated using the designated MUNE (motor unit number estimation) technique	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10793	Electrical impedance myography muscle weak indicator	Indicator whether there is clinical evidence of muscle weakness using electrical impedance myography (EIM)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C08000	Family history relative type total membercount	Count of total family members and ancestors for the specified relative type	Supplemental	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's/subject's family member has donated biological sample(s) to a repository	Supplemental	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C08002	Family history relative type biological sample identifier number	Identification (ID) number assigned to family member's biological sample in repository	Supplemental	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10813	Adopted indicator	Whether the subject/participant was adopted	Core	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10814	Parents biologically related indicator	The indicator whether the subject's/participant's parents are biologically related	Supplemental	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Core	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event	Core	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject	Core	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10823	Alcohol last consumed date and time	Date (and time, if applicable and known) the participant/subject last drank alcohol	Exploratory	Fasting Information	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10824	Medication withheld prior to sample collection indicator	Indicator as to whether or not medications were withheld from the participant/subject prior to sample collection	Exploratory	Fasting Information	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10825	Medication withheld prior sample collection name	Name of medication withheld prior to sample collection	Exploratory	Fasting Information	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C11137	Medication withheld duration	Duration, in hours and minutes, medication withheld from the participant/subject	Exploratory	Fasting Information	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10564	Fasting prior to sample collection indicator	Indicator of whether or not the participant/subject was on fasting prior to blood sample collection	Supplemental	Fasting Information	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.