CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 1271
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11506 ALS Depression Inventory-12 (ADI-12) - feel empty scale

The participant/subject is rating to what extent they agree that they feel empty more often than not as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11507 ALS Depression Inventory-12 (ADI-12) - nothing enjoy scale

The participant/subject is rating to what extent they agree that they have nothing to look forward to or can enjoy as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11500 ALS Depression Inventory-12 (ADI-12) - happy smile scale

The participant/subject is rating to what extent they agree that they are happy and smile often as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11508 ALS Depression Inventory-12 (ADI-12) - lost abandoned scale

The participant/subject is rating to what extent they agree that they feel lost and abandoned and don't know how to carry on as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11501 ALS Depression Inventory-12 (ADI-12) - appreciate life scale

The participant/subject is rating to what extent they agree that they appreciate their life as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11509 ALS Depression Inventory-12 (ADI-12) - look forward new day scale

The participant/subject is rating to what extent they agree that they look forward to every new day as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11502 ALS Depression Inventory-12 (ADI-12) - get away relaxed scale

The participant/subject is rating to what extent they agree that they can get away from it all and relax as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11510 ALS Depression Inventory-12 (ADI-12) - wish dead scale

The participant/subject is rating to what extent they agree that they often wish they were dead as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11503 ALS Depression Inventory-12 (ADI-12) - alive vital scale

The participant/subject is rating to what extent they agree that they feel alive and vital as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11511 ALS Depression Inventory-12 (ADI-12) - lost all energy scale

The participant/subject is rating to what extent they agree that they fell like they have lost all of their energy as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11504 ALS Depression Inventory-12 (ADI-12) - more sad scale

The participant/subject is rating to what extent they agree that they feel sad more often than not as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11512 ALS Depression Inventory-12 (ADI-12) - total score

Total score on the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11505 ALS Depression Inventory-12 (ADI-12) - lost interest family friends scale

The participant/subject is rating to what extent they agree that they have lost all interest in their family and friends as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11976 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - salivation score

Salivation score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11984 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - walking score

Walking score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17773 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - performed indicator

Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) performed versus not performed

 Supplemental ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11977 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - swallowing score

Swallowing score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11985 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - climbing stairs score

Climbing stairs score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11978 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - handwriting score

Handwriting score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11986 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - dyspnea score

Dyspnea score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11979 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - gastrostomy status

Whether the participant/subject has a gastrostomy tube on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11987 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - orthopnea score

Orthopnea score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11980 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - cutting food and handling utensils without gastronomy score

Cutting food and handling utensils score for patients without gastrostomy on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11988 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - respiratory insufficiency score

Respiratory insufficiency score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11981 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - cutting food and handling utensils with gastronomy score

Cutting food and handling utensils score for patients with gastrostomy on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

 Core ALS Functional Rating Scale - Revised (ALSFRS-R) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 1 - 25 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.