CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's/subject's medical history

Supplemental Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10850 NINDS Human Genetics DNA and Cell Line Repository blood sample indicator

Indicator whether the participant/subject gave a blood sample to the NINDS Human Genetics DNA and Cell Line Repository (a.k.a., Coriell repository)

Supplemental Genetics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10932 Imaging lesion found indicator

Indicator of whether lesions are found within the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10983 Childbearing potential surgically sterile type

Type of surgical procedure that rendered the participant/subject sterile

Supplemental Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10599 Parameter map calculation type

Type(s) of parameter maps calculated for the perfusion MRI scan being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10836 Imaging functional task type

The functional status of the participant/subject when tasks are of a certain type

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18714 Imaging radio frequency coil channel count other text

The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54462 Functional Gait Assessment (FGA) - Gait task support base narrow step count

Count of steps taken by the subject/participant in performing the Gait With Narrow Base of Support task, as part of the Functional Gait Assessment (FGA)

Supplemental Dynamic Gait Index (DGI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09339 Geriatric Depression Scale (GDS) - afraid something bad indicator

Indicator whether respondent was afraid over the past week that something bad was going to happen to him or her, as part of the Geriatric Depression Scale (short form) (GDSSF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11100 Pulmonary function test position type

Participant's/subject's position for the pulmonary function assessment

Supplemental Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11027 Neuromuscular exam cranial tongue movement result

Result of tongue movement examination

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21904 Geriatric Depression Scale (GDS) Long Form - Future worry indicator

Indicator whether the subject is frequently worried about the future (long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11991 Timed 25-Foot Walk (T25FW) - assistive device status

Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

Supplemental Prior and Concomitant Medications Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10826 Fixed dynamometry muscle test performed indicator

Indicator of whether the fixed dynamometry muscle testing was done

Supplemental Fixed Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18715 Imaging radio frequency coil other text

The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11040 Reflex examination result

Result of the examination of the reflexes of the specific muscle group

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12000 Timed 25-Foot Walk (T25FW) - trial 2 not completed reason

Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17807 Imaging parallel acquisition details text

Text description of any additional details about the parallel acquisition used, if any, in the MRI sequence being reported

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.