CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1271
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11658 Edmonton Symptom Assessment System (ESAS) - depression scale

Scale rating the intensity of depression, as part of the Edmonton Symptom Assessment System (ESAS)

Supplemental Edmonton Symptom Assessment System (ESAS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08241 Imaging field of view axis 1 measurement

Axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10581 Imaging measurement pair count

Count of the number of control and tag measurement pairs in the imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11626 Center for Neurologic Study-Lability Scale (CNS-LS) - laughter control inability scale

Scale used to measure the degree to which the participant/subject felt he found himself unable to control his laughter during this past week, as part of the Center for Neurologic Study-Lability Scale (CNS-LS) for pseudobulbar affect (PBA) questionnaire.

Supplemental Center for Neurologic Study - Lability Scale for pseudobulbar affect (PBA) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11621 Center for Neurologic Study Bulbar Function Scale (CNS-BFS) - food stuck throat frequency score

Score for the frequency that food got stuck in the participant's throat in the past week, as part of the Center for Neurologic Study Bulbar Function Scale (CNS-BFS)

Supplemental Center for Neurologic Study - Bulbar Function Scale (CNS-BFS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10969 Spectroscopy spectral fit software used type

Type of the spectral fit software used.

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18708 Imaging pulse sequence other text

The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21078 Frontal Systems Behavior Scale (FrSBE) - Apathy subscale T score

T score for Apathy subscale as part of Frontal Systems Behavior Scale (FrSBE)

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11709 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode sadness score

Score representing the number of episodes of laughter that occurred with feelings of sadness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC)

Supplemental Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11997 Timed 25-Foot Walk (T25FW) - trial 1 not completed reason

Indicator of the reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17777 Edmonton Symptom Assessment System (ESAS) - form complete date and time

Date and time the assessment was done, as part of the Edmonton Symptom Assessment System (ESAS)

Supplemental Edmonton Symptom Assessment System (ESAS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10577 Imaging signal averages number

Number of signal acquisitions averaged in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C20985 Frontal Systems Behavior Scale (FrSBE) - Poor judgment problem solver frequency scale

Frequency of showing poor judgment, is a poor problem solver as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10590 Imaging interpolation indicator

Whether the k-space data were interpolated before applying Fourier transform

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18767 Temperature measurement other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured.

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11669 Emotional Lability Questionnaire (ELQ) - laughter sudden episode average duration score

Score for the average duration of any sudden episodes of laughter experienced by the participant/subject in the past four weeks, as part of the Emotional Lability Questionnaire (ELQ)

Supplemental Emotional Lability Questionnaire: Person with MND (ELQ-MND) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17823 McGill Quality of Life Questionnaire (MQOL) - troublesome physical symptom problem number

Number identifying one of up to three of the biggest individual troublesome physical symptoms or problems, if any, that the participant has experienced over the past two days, as part of the McGill Quality of Life Questionnaire (MQOL)

Supplemental McGill Quality of Life Questionnaire (MQOL) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09330 Geriatric Depression Scale (GDS) - wonderful alive indicator

Indicator whether respondent thought over the past week that it is wonderful to be alive now, as part of the Geriatric Depression Scale (short form) (GDSSF).

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17871 Water reference data acquisition signal averages number

Number of signal acquisitions averaged in imaging acquisition. Water reference data acquisition section.

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02498 Imaging scanner software version number

Version number of the imaging scanner software

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21099 Frontal Systems Behavior Scale (FrSBE) - Missing answer subscale E count

Count of unanswered or missing questions for Executive Dysfunction subscale as part of Frontal Systems Behavior Scale (FrSBE) form

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10590 Imaging interpolation indicator

Whether the k-space data were interpolated before applying Fourier transform

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21009 Frontal Systems Behavior Scale (FrSBE) - Inflexible frequency scale

Frequency of being inflexible, unable to change routines as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 1 - 25 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.