CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12001 Timed 25-Foot Walk (T25FW) - more than two attempts indicator

Indicator of whether more than two attempts were required to obtain two successful trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10774 Electromyography normal results indicator

Indicator whether the electromyography (EMG) results are normal for the anatomic site and side studied

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11131 Body mass index value

Value of the participant's body mass index, calculated from height and weight

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54449 Dynamic Gait Index (DGI) - Gait speed change task score

Score for the change in gait speed task, as part of the Dynamic Gait Index (DGI)

Supplemental Dynamic Gait Index (DGI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17774 Diary cramps date

Date in the diary where the participant/subject was evaluated for the presence of cramps as part of the Clinical Milestones and Events questionnaire

Supplemental Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10786 Electrophysiology motor unit number estimation nerve type

Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01706 Lab test result text

Result of the laboratory test

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54457 Dynamic Gait Index (DGI) - Step over obstacle task score

Score for the subject/participant's performance on the Step Over Obstacles task, as part of the Dynamic Gait Index (DGI)

Supplemental Dynamic Gait Index (DGI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09334 Geriatric Depression Scale (GDS) - people better off indicator

Indicator whether over the past week respondent thought most other people are better off than her or him, as part of the Geriatric Depression Scale (short form) (GDSSF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17783 Grip strength fatigue percent target not attain indicator

Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded

Supplemental Grip Strength Fatigue Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17781 Electrical impedance myography comment text

Text field for comments on the electrical impedance myography (EIM) performed

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11043 Muscle tone result

Result of the muscle tone assessment

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10872 Dynamometry hand held no result reason

Reason why there was no hand held dynamometry result for the muscle

Supplemental Hand Held Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

Supplemental Prior and Concomitant Medications Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18610 Imaging in plane resolution axis 2 measurement

Axis 2 of in-plane spatial resolution used in imaging acquisition

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 1 - 25 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.