C00015
Education year count
Number of years of education completed (age 5 and beyond)
Supplemental-Highly Recommended
General Core
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10932
Imaging lesion found indicator
Indicator of whether lesions are found within the imaging study
Supplemental
Magnetic Resonance Imaging (MRI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C21094
Frontal Systems Behavior Scale (FrSBE) - Missing answer subscale A count
Count of unanswered or missing questions for Apathy subscale as part of Frontal Systems Behavior Scale (FrSBE) form
Supplemental
Frontal Systems Behavioral Scale (FrSBe)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C17863
Timed 25-Foot Walk (T25FW) - trial not complete reason text
Text description of the indicated reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)
Supplemental
Timed 25-Foot Walk (T25-FW)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C21005
Frontal Systems Behavior Scale (FrSBE) - Lack emotion concern frequency scale
Frequency of showing little emotion, is unconcerned and unresponsive as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale
Supplemental
Frontal Systems Behavioral Scale (FrSBe)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10599
Parameter map calculation type
Type(s) of parameter maps calculated for the perfusion MRI scan being reported
Supplemental
Brain Perfusion Magnetic Resonance Imaging
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11675
Emotional Lability Questionnaire (ELQ) - laughter sudden episode other emotion text
Text specification of other emotions felt by the participant either immediately before or simultaneously with sudden episodes of laughter in the past four weeks , as part of the Emotional Lability Questionnaire (ELQ)
Supplemental
Emotional Lability Questionnaire: Person with MND (ELQ-MND)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C17541
Tardieu Scale assistive device text
Text identifying an assistive device used by the participant/subject for an immovable joint in a limb
Supplemental
Tardieu Scale
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10836
Imaging functional task type
The functional status of the participant/subject when tasks are of a certain type
Supplemental
Functional Magnetic Resonance Imaging (fMRI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C09336
Geriatric Depression Scale (GDS) - empty life indicator
Indicator whether respondent has felt his or her life is empty over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)
Supplemental
Geriatric Depression Scale (GDS)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C18714
Imaging radio frequency coil channel count other text
The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan
Supplemental
Magnetic Resonance Spectroscopy
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11548
Cambridge Behavioural Inventory Revised (CBI-R) - sad depressed frequency score
Score for frequency over past month of appearing sad or depressed as part of the Cambridge Behavioural Inventory Revised (CBI-R)
Supplemental
Cambridge Behavioral Inventory - Revised
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C18690
Imaging analysis software other text
The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study
Supplemental
Magnetic Resonance Imaging (MRI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11971
ALS Severity Score (ALSSS) - bulbar score value
Value of the sum of the speech subscore and swallowing subscore, as part of the ALS Severity Score of Hillel et al. (ALSSS)
Supplemental
ALS Swallowing Severity Scale (ALSSS)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C20527
European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category
Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)
Supplemental
EuroQoL-5 Dimension Questionnaire (EQ-5D)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10276
Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem distraction indicator
Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem is a major distraction in my life, as part of Quality of Life in Swallowing Disorders (SWAL-QOL)
Supplemental
Quality of Life in Swallowing Disorders (SWAL-QOL)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C21020
Frontal Systems Behavior Scale (FrSBE) - Food lack smell taste complaint frequency scale
Frequency of complaining that food has no taste or smell as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale
Supplemental
Frontal Systems Behavioral Scale (FrSBe)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11683
Emotional Lability Questionnaire (ELQ) - cry sudden episode sad proportion score
Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that occurred as a result of sadness, as part of the Emotional Lability Questionnaire (ELQ)
Supplemental
Emotional Lability Questionnaire: Person with MND (ELQ-MND)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C21900
Geriatric Depression Scale (GDS) Long Form - Future hopeful indicator
Indicator whether the subject is hopeful about the future (long form) (GDSLF)
Supplemental
Geriatric Depression Scale (GDS)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11556
Cambridge Behavioural Inventory Revised (CBI-R) - increased appetite frequency score
Score for frequency over past month of her/him having greater appetite and eating more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R)
Supplemental
Cambridge Behavioral Inventory - Revised
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C18719
Imaging slice orientation type other text
The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition
Supplemental
Magnetic Resonance Imaging (MRI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11603
Center for Neurologic Study Bulbar Function Scale (CNS-BFS) - mouth dab stop drool frequency score
Score for the frequency that the participant's mouth needed to be dabbed to prevent drooling in the past week, as part of the Center for Neurologic Study Bulbar Function Scale (CNS-BFS)
Supplemental
Center for Neurologic Study - Bulbar Function Scale (CNS-BFS)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10577
Imaging signal averages number
Number of signal acquisitions averaged in imaging acquisition
Supplemental
Magnetic Resonance Spectroscopy
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C54448
Functional Gait Assessment (FGA) - Gait speed change task score
Score for the change in gait speed task, as part of the Functional Gait Assessment (FGA)
Supplemental
Dynamic Gait Index (DGI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10284
Quality of Life in Swallowing Disorders (SWAL-QOL) - choking liquid problem indicator
Scale assessing how true the following statement has been for the participant during the last month: Choking when you take liquids. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)
Supplemental
Quality of Life in Swallowing Disorders (SWAL-QOL)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis