CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10932 Imaging lesion found indicator

Indicator of whether lesions are found within the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21094 Frontal Systems Behavior Scale (FrSBE) - Missing answer subscale A count

Count of unanswered or missing questions for Apathy subscale as part of Frontal Systems Behavior Scale (FrSBE) form

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17863 Timed 25-Foot Walk (T25FW) - trial not complete reason text

Text description of the indicated reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21005 Frontal Systems Behavior Scale (FrSBE) - Lack emotion concern frequency scale

Frequency of showing little emotion, is unconcerned and unresponsive as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10599 Parameter map calculation type

Type(s) of parameter maps calculated for the perfusion MRI scan being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11675 Emotional Lability Questionnaire (ELQ) - laughter sudden episode other emotion text

Text specification of other emotions felt by the participant either immediately before or simultaneously with sudden episodes of laughter in the past four weeks , as part of the Emotional Lability Questionnaire (ELQ)

Supplemental Emotional Lability Questionnaire: Person with MND (ELQ-MND) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17541 Tardieu Scale assistive device text

Text identifying an assistive device used by the participant/subject for an immovable joint in a limb

Supplemental Tardieu Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10836 Imaging functional task type

The functional status of the participant/subject when tasks are of a certain type

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09336 Geriatric Depression Scale (GDS) - empty life indicator

Indicator whether respondent has felt his or her life is empty over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18714 Imaging radio frequency coil channel count other text

The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11548 Cambridge Behavioural Inventory Revised (CBI-R) - sad depressed frequency score

Score for frequency over past month of appearing sad or depressed as part of the Cambridge Behavioural Inventory Revised (CBI-R)

Supplemental Cambridge Behavioral Inventory - Revised Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11971 ALS Severity Score (ALSSS) - bulbar score value

Value of the sum of the speech subscore and swallowing subscore, as part of the ALS Severity Score of Hillel et al. (ALSSS)

Supplemental ALS Swallowing Severity Scale (ALSSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental EuroQoL-5 Dimension Questionnaire (EQ-5D) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10276 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem distraction indicator

Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem is a major distraction in my life, as part of Quality of Life in Swallowing Disorders (SWAL-QOL)

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21020 Frontal Systems Behavior Scale (FrSBE) - Food lack smell taste complaint frequency scale

Frequency of complaining that food has no taste or smell as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11683 Emotional Lability Questionnaire (ELQ) - cry sudden episode sad proportion score

Score for the proportion of any sudden episodes of crying experienced by the participant/subject in the past four weeks that occurred as a result of sadness, as part of the Emotional Lability Questionnaire (ELQ)

Supplemental Emotional Lability Questionnaire: Person with MND (ELQ-MND) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21900 Geriatric Depression Scale (GDS) Long Form - Future hopeful indicator

Indicator whether the subject is hopeful about the future (long form) (GDSLF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11556 Cambridge Behavioural Inventory Revised (CBI-R) - increased appetite frequency score

Score for frequency over past month of her/him having greater appetite and eating more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R)

Supplemental Cambridge Behavioral Inventory - Revised Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11603 Center for Neurologic Study Bulbar Function Scale (CNS-BFS) - mouth dab stop drool frequency score

Score for the frequency that the participant's mouth needed to be dabbed to prevent drooling in the past week, as part of the Center for Neurologic Study Bulbar Function Scale (CNS-BFS)

Supplemental Center for Neurologic Study - Bulbar Function Scale (CNS-BFS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10577 Imaging signal averages number

Number of signal acquisitions averaged in imaging acquisition

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54448 Functional Gait Assessment (FGA) - Gait speed change task score

Score for the change in gait speed task, as part of the Functional Gait Assessment (FGA)

Supplemental Dynamic Gait Index (DGI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10284 Quality of Life in Swallowing Disorders (SWAL-QOL) - choking liquid problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Choking when you take liquids. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 1 - 25 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.