CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11051 Plantar reflex result

Result of the examination of the plantar reflex

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C20967 Frontal Systems Behavior Scale (FrSBE) - Action speech embarassment frequency scale

Frequency of doing or saying embarrassing things as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11898 McGill Quality of Life Questionnaire (MQOL) - two day perception score

Score reflecting how the participant felt in general about the past two days, as part of the McGill Quality of Life Questionnaire (MQOL)

Supplemental McGill Quality of Life Questionnaire (MQOL) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11924 Modified Fatigue Impact Scale (MFIS) - difficult organize thought home work score

Scale for having had difficulty organizing thoughts when doing things at home or at work as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11837 Frontal Behavioral Inventory-ALS Version (FBI-ALS) - aggression score

Score reflecting the intensity or frequency of physical or verbal aggression displayed by the participant, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Frontal Behavioral Inventory - ALS Version (FBI-ALS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18106 Quality of Life in Swallowing Disorders (SWAL-QOL) - help method indicator

If received help, what type of help did the subject receive, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11533 Cambridge Behavioural Inventory Revised (CBI-R) - difficulty writing frequency score

Score for frequency over past month of having difficulties writing as part of the Cambridge Behavioural Inventory Revised (CBI-R)

Supplemental Cambridge Behavioral Inventory - Revised Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54462 Functional Gait Assessment (FGA) - Gait task support base narrow step count

Count of steps taken by the subject/participant in performing the Gait With Narrow Base of Support task, as part of the Functional Gait Assessment (FGA)

Supplemental Dynamic Gait Index (DGI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11851 Frontal Behavioral Inventory (FBI) - loss insight score

The score the caregiver gives for the participant's/subject's loss of insight, as part of the Frontal Behavioral Inventory (FBI) form

Supplemental Frontal Behavioral Inventory (FBI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18657 Imaging diffusion sixth b value

Value, in square millimeters per second, of the sixth b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11504 ALS Depression Inventory-12 (ADI-12) - more sad scale

The participant/subject is rating to what extent they agree that they feel sad more often than not as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

Supplemental ALS Depression Inventory (ADI-12) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10784 Motor unit number estimation single motor unit potential measurement

Measurement in microvolts (?V) of the single motor unit potential (SMUP) amplitude, estimated using the designated MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17830 Muscle biobsy limb affected clinical text

Text representing details on how the limb, from which the biopsy was taken, was clinically affected

Supplemental Tissue Based Marker Collection Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11932 Modified Fatigue Impact Scale (MFIS) - psychosocial score

Sum of MFIS Psychosocial items (range: 0-8)

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09329 Geriatric Depression Scale (GDS) - memory problem indicator

Indicator whether respondent feels she or he had, over the past week, more problems with memory than most, as part of the Geriatric Depression Scale (short form) (GDSSF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08506 36-item Short Form Health Survey (SF-36) - Health limited climbing several stairs score

Score of surveyee-reported limited climbing several flights of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11541 Cambridge Behavioural Inventory Revised (CBI-R) - inappropriate humor laughter frequency score

Score for frequency over past month of finding humor or laughing at things others do not find funny as part of the Cambridge Behavioural Inventory Revised (CBI-R)

Supplemental Cambridge Behavioral Inventory - Revised Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11859 Frontal Behavioral Inventory (FBI) - inappropriateness score

The score the caregiver gives for the participant's/subject's inappropriateness as part of the Frontal Behavioral Inventory (FBI) form

Supplemental Frontal Behavioral Inventory (FBI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10306 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem discourage indicator

Scale assessing how true the following statement has been for the participant during the last month: I've been discouraged by my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11512 ALS Depression Inventory-12 (ADI-12) - total score

Total score on the ALS Depression Inventory-12 (ADI-12) questionnaire

Supplemental ALS Depression Inventory (ADI-12) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10793 Electrical impedance myography muscle weak indicator

Indicator whether there is clinical evidence of muscle weakness using electrical impedance myography (EIM)

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11713 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode motor neuron disease onset change indicator

Indicator of whether there was a change in pattern of laughing before the onset of MND (motor neuron disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC)

Supplemental Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 1 - 25 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.