CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 176 - 200 of 1271
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09361 Hamilton Depression Rating Scale (HDRS) - somatic symptoms indicator

Score for the intensity of the participant/subject's somatic gastrointestinal symptoms, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10584 Imaging phase resolution percentage value

The value in percent of the phase resolution used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11631 Checklist Individual Strength (CIS20R) - tired feeling scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I feel tired. Part of the Checklist Individual Strength (CIS20R) questionnaire.

Exploratory Checklist for Individual Strength - Fatigue (CIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Exploratory Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11016 Polysomnography nocturnal oximetry end date and time

Date and time of the end of nocturnal oximetry.

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

Exploratory Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09645 Fatigue Severity Scale (FSS) - interfere duty responsibility scale

Scale used to describe the extent to which fatigue interfered with the patient's ability to carry out certain duties and responsibilities, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

Exploratory Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition.

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition.

Exploratory Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Exploratory Grip Strength Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Exploratory Grip Strength Fatigue Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11008 Vascular partial pressure carbon dioxide four hour period maximum value

Value, as mmHg, of the 4-hour maximum partial pressure carbon dioxide (pCO2), as part of Gas Exchange.

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11876 Madrid Quantitative Neuromuscular Assessment (MAQUINA) - PaTaKa time value

Time it took the participant to repeat PaTaKa 20 times as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA)

Exploratory Madrid Quantitative Neuromuscular Assessment (MAQUINA) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09370 Hamilton Depression Rating Scale (HDRS) - early night insomnia indicator

Score for the participant/subject's difficulty, if any, with early-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11640 Checklist Individual Strength (CIS20R) - low activity daily scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I think I do very little in a day. Part of the Checklist Individual Strength (CIS20R) questionnaire.

Exploratory Checklist for Individual Strength - Fatigue (CIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18811 Functional MRI data processing software other text

The free-text field related to 'Functional MRI data processing software type'. Name of the fMRI data processing software used

Exploratory Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11575 Caregiver Burden Scale (CGBS) - facing problems relative care difficult solve scale

Scale of subject/participant's feeling of finding him/herself facing purely practical problems in the care of the relative that are difficult to solve as part of Caregiver Burden Scale form

Exploratory Caregiver Burden Scale (CGBS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11648 Checklist Individual Strength (CIS20R) - activity interest low scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I don't feel like doing anything. Part of the Checklist Individual Strength (CIS20R) questionnaire.

Exploratory Checklist for Individual Strength - Fatigue (CIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11583 Caregiver Burden Scale (CGBS) - physically trying care relative scale

Scale of subject/participant's finding of physically trying to take care of the relative as part of Caregiver Burden Scale form

Exploratory Caregiver Burden Scale (CGBS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10616 Clinical event or milestone achieved indicator

Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11591 Caregiver Burden Scale (CGBS) - expected life different scale

Scale of subject/participant's expectation that life would be different from it is as part of Caregiver Burden Scale form

Exploratory Caregiver Burden Scale (CGBS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10634 Diary month cramp severity category

Global severity rating of the cramps experienced by the participant/subject in the past 30 days

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10890 Resting energy expenditure measurement

Resting Energy Expenditure (REE) is a measure of the calories (energy) burned to maintain bodily functions in the alert, resting (physically inactive) state

Exploratory Resting Energy Expenditure Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 176 - 200 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.