CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1271
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C10821 Food last consumed date and time

Date (and time, if applicable and known) the participant/subject last ate food

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11592 Caregiver Burden Scale (CGBS) - avoid inviting home relative problem

Scale of subject/participant's avoiding inviting friends and acquaintances home because of the relative's problem as part of Caregiver Burden Scale form

 Exploratory Caregiver Burden Scale (CGBS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition.

 Exploratory Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11003 Cardiovascular myocardial oxygen consumption value

Value, in mL/100 g/min, calculated for myocardial oxygen consumption (Mo2).

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

 Exploratory Grip Strength Fatigue False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11010 Vascular partial pressure carbon dioxide mean transcutaneous value

Value, as a percent, of the mean transcutaneous partial pressure carbon dioxide (pCO2), as part of Gas Exchange.

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09639 Fatigue Severity Scale (FSS) - low motivation scale

Scale used to describe the extent to which the patient's motivation was lower in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

 Exploratory Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11018 Polysomnography nocturnal oximetry net time duration

Duration of net nocturnal oximetry recording.

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09647 Fatigue Severity Scale (FSS) - interfere work family social scale

Scale used to describe the extent to which fatigue interferes with the patient's work, family, or social life, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI).

 Exploratory Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

 Exploratory Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

 Exploratory Grip Strength False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11004 Cardiovascular myocardial oxygen consumption calculation type

Type of calculation method used to obtain myocardial oxygen consumption (Mo2).

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09364 Hamilton Depression Rating Scale (HDRS) - hypochondriasis indicator

Score for the intensity of the participant/subject's hypochondriasis, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition.

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11634 Checklist Individual Strength (CIS20R) - physically exhausted feeling scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: Physically I feel exhausted. Part of the Checklist Individual Strength (CIS20R) questionnaire.

 Exploratory Checklist for Individual Strength - Fatigue (CIS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17861 Spectroscopy PRESS asymmetry second echo duration

The duration in milliseconds for the second echo time (TE) in an asymmetrically divided PRESS (double spin-echo) sequence

 Exploratory Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11878 Madrid Quantitative Neuromuscular Assessment (MAQUINA) - arm pedaling time value

Time it took the participant to complete 20 rounds at a table pedalier using his/her arms as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA)

 Exploratory Madrid Quantitative Neuromuscular Assessment (MAQUINA) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09372 Hamilton Depression Rating Scale (HDRS) - early morning insomnia indicator

Score for the participant/subject's difficulty, if any, with insomnia in the early morning hours, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition.

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11642 Checklist Individual Strength (CIS20R) - rest scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I am rested. Part of the Checklist Individual Strength (CIS20R) questionnaire.

 Exploratory Checklist for Individual Strength - Fatigue (CIS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11577 Caregiver Burden Scale (CGBS) - own health suffer care relative scale

Scale of subject/participant's feeling about own health suffering because of taking care of the relative as part of Caregiver Burden Scale form

 Exploratory Caregiver Burden Scale (CGBS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11650 Checklist Individual Strength (CIS20R) - physical condition excellent feeling scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: Physically I feel I am in excellent condition. Part of the Checklist Individual Strength (CIS20R) questionnaire.

 Exploratory Checklist for Individual Strength - Fatigue (CIS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 151 - 175 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.