C10821
Food last consumed date and time
Date (and time, if applicable and known) the participant/subject last ate food
Exploratory
Fasting Information
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11592
Caregiver Burden Scale (CGBS) - avoid inviting home relative problem
Scale of subject/participant's avoiding inviting friends and acquaintances home because of the relative's problem as part of Caregiver Burden Scale form
Exploratory
Caregiver Burden Scale (CGBS)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10587
Imaging echo spacing value
Measurement, in milliseconds, of the echo spacing used in diffusion acquisition.
Exploratory
Diffusion Tensor Imaging (DTI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11003
Cardiovascular myocardial oxygen consumption value
Value, in mL/100 g/min, calculated for myocardial oxygen consumption (Mo2).
Exploratory
Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10854
Grip device width setting value
Value of the width setting on the grip device used to test the participant/subject's grip strength
Exploratory
Grip Strength Fatigue
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11010
Vascular partial pressure carbon dioxide mean transcutaneous value
Value, as a percent, of the mean transcutaneous partial pressure carbon dioxide (pCO2), as part of Gas Exchange.
Exploratory
Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C09639
Fatigue Severity Scale (FSS) - low motivation scale
Scale used to describe the extent to which the patient's motivation was lower in the past week, as part of the Fatigue Severity Scale (FSS)
Exploratory
Fatigue Severity Scale (FSS)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C08240
Imaging flip angle measurement
Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle
Exploratory
Functional Magnetic Resonance Imaging (fMRI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11018
Polysomnography nocturnal oximetry net time duration
Duration of net nocturnal oximetry recording.
Exploratory
Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10588
Imaging echo train length measurement
Measurement of the echo train length used in imaging acquisition
Exploratory
Magnetic Resonance Imaging (MRI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C09647
Fatigue Severity Scale (FSS) - interfere work family social scale
Scale used to describe the extent to which fatigue interferes with the patient's work, family, or social life, as part of the Fatigue Severity Scale (FSS)
Exploratory
Fatigue Severity Scale (FSS)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10583
Imaging base resolution value
Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI).
Exploratory
Functional Magnetic Resonance Imaging (fMRI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10593
Imaging fat signal suppressed indicator
Indicator as to whether or not fat signal was suppressed in imaging acquisition
Exploratory
Functional Magnetic Resonance Imaging (fMRI)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10854
Grip device width setting value
Value of the width setting on the grip device used to test the participant/subject's grip strength
Exploratory
Grip Strength
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11004
Cardiovascular myocardial oxygen consumption calculation type
Type of calculation method used to obtain myocardial oxygen consumption (Mo2).
Exploratory
Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C09364
Hamilton Depression Rating Scale (HDRS) - hypochondriasis indicator
Score for the intensity of the participant/subject's hypochondriasis, as part of the Hamilton Depression Rating Scale (HDRS)
Exploratory
Hamilton Depression Rating Scale (HDRS)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10587
Imaging echo spacing value
Measurement, in milliseconds, of the echo spacing used in diffusion acquisition.
Exploratory
Brain Perfusion Magnetic Resonance Imaging
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11634
Checklist Individual Strength (CIS20R) - physically exhausted feeling scale
Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: Physically I feel exhausted. Part of the Checklist Individual Strength (CIS20R) questionnaire.
Exploratory
Checklist for Individual Strength - Fatigue (CIS)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C17861
Spectroscopy PRESS asymmetry second echo duration
The duration in milliseconds for the second echo time (TE) in an asymmetrically divided PRESS (double spin-echo) sequence
Exploratory
Magnetic Resonance Spectroscopy
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11878
Madrid Quantitative Neuromuscular Assessment (MAQUINA) - arm pedaling time value
Time it took the participant to complete 20 rounds at a table pedalier using his/her arms as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA)
Exploratory
Madrid Quantitative Neuromuscular Assessment (MAQUINA)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C09372
Hamilton Depression Rating Scale (HDRS) - early morning insomnia indicator
Score for the participant/subject's difficulty, if any, with insomnia in the early morning hours, as part of the Hamilton Depression Rating Scale (HDRS)
Exploratory
Hamilton Depression Rating Scale (HDRS)
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10595
Imaging parallel acquisition used type
Type of the parallel acquisition method used in imaging acquisition.
Exploratory
Brain Perfusion Magnetic Resonance Imaging
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11642
Checklist Individual Strength (CIS20R) - rest scale
Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I am rested. Part of the Checklist Individual Strength (CIS20R) questionnaire.
Exploratory
Checklist for Individual Strength - Fatigue (CIS)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11577
Caregiver Burden Scale (CGBS) - own health suffer care relative scale
Scale of subject/participant's feeling about own health suffering because of taking care of the relative as part of Caregiver Burden Scale form
Exploratory
Caregiver Burden Scale (CGBS)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11650
Checklist Individual Strength (CIS20R) - physical condition excellent feeling scale
Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: Physically I feel I am in excellent condition. Part of the Checklist Individual Strength (CIS20R) questionnaire.
Exploratory
Checklist for Individual Strength - Fatigue (CIS)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis