CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

1271 results.
Operations
Selected 21 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21009 Frontal Systems Behavior Scale (FrSBE) - Inflexible frequency scale

Frequency of being inflexible, unable to change routines as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11032 Neuromuscular exam muscle type

Type of muscle or muscle group examined

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18714 Imaging radio frequency coil channel other text

The free-text field related to 'Imaging radio frequency coil channel count' specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08509 36-item Short Form Health Survey (SF-36) - Health limited walking miles score

Score of surveyee-reported limited walking more than one mile due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10309 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem not go out indicator

Scale assessing how true the following statement has been for the participant during the last month: I do not go out to eat because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).

Supplemental EuroQoL-5 Dimension Questionnaire (EQ-5D) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17814 Lab test antibody result

Result of the antibody laboratory test

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21024 Frontal Systems Behavior Scale (FrSBE) - Misbehavior apology frequency scale

Frequency of apologizing for misbehaviour (for example, apologizes for swearing) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11046 Fasciculations abdominal wall status

Status, as presence or absence, of abdominal wall fasciculations

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10567 Imaging radio frequency coil type

Type of radio frequency (RF) coil(s) used for the body part scanned

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08517 36-item Short Form Health Survey (SF-36) - Cut time on work activities emotional problems indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10317 Quality of Life in Swallowing Disorders (SWAL-QOL) - trouble staying asleep indicator

Scale assessing how true the following statement has been for the participant during the last month: Having trouble staying asleep? As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54450 Functional Gait Assessment (FGA) - Gait head turn horizontal task score

Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Functional Gait Assessment (FGA)

Supplemental Dynamic Gait Index (DGI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21041 Frontal Systems Behavior Scale (FrSBE) - Benefit accept criticism frequency scale

Frequency of benefitting from feedback, accepting constructive criticism from others as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08525 36-item Short Form Health Survey (SF-36) - Times down score

Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10687 Imaging diffusion first b value

Value, in square millimeters per second, of the first b-value used in diffusion acquisition.

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17836 Quality of Life in Swallowing Disorders (SWAL-QOL) - education level status

Participant's highest education level.

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
1271 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.